Bits and Bobs

Last week Mr Myasthenia Kid was on holiday, so it meant we had to catch up on some jobs around the house that were long overdue. The problem with this is that it leaves me utterly exhausted / in lots of pain when he goes back to work. The work over ran into yesterday so my hands are killing me, so for word count this post maybe a little light.

 

The wood work in the house has been crying out for some TLC for a while. We both hate using gloss paint and over the last 15 years we’ve never managed yet to paint anything with gloss without ending up with dog hair stuck to it. One of the mutts always manages to brush up against it. We have tried quick drying gloss and the same thing happens. So this time we decided to use Eggshell as it would dry quicker, it may not be as hard-wearing as gloss but it doesn’t smell as bad and dries an awful lot quicker.

 

The house we live in was 30 years old last year. Before we bought it the property had been rented out, DIY jobs had been done on the cheap by the landlord and the renters. So the stair bannister instead of being sanded properly before being repainted just had layer upon layer of gloss on it. It was starting to peel off in great big chunks and the paint underneath was various colours which was down to the age of the paint being used. So before we could paint the banister it needed to be stripped of all the flaking paint, in a lot of places that meant taking it right back to the woodwork. I helped where I could but on the day after I had done an awful lot of sanding I ended up feeling horrendous. I hurt everywhere and all I could do was lie on the sofa feeling sorry for myself. I have to pace myself or my body will make me pace myself by shutting down and making it so that I can’t move.

 

Finally yesterday after two coats of undercoat and two coats of eggshell the bannister was complete. I can barely move my fingers today as they are so swollen with having gripped a paintbrush yesterday They are also red and swollen. So today will be a very lazy day today for me.

 

This is the before (taken in December)

You can see that the banister is a variety of colours – this is where paint has been flaking off and I had started it myself and then quickly realised that I would be unable to tackle this by myself due to my health.

This is after – we still have to stain the wooden post tops, we are still deciding what colour to stain them but it looks an awful lot better than it did. I am really pleased with what we have done.

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I thought as well I would give you a quick update on what I have been doing sewing wise. On Friday 13th April I bought myself an overlocker, (in June I will be going on a course to learn how to get the most out of it). An overlocker trims excess material with a blade and also finishes your hems in a much more professional way. It can also be used to stop fabrics fraying.

 

 

The following Monday I plucked up the courage to thread it – an overlocker takes anywhere between two to five threads. Mine takes 4, so it has two needles and two loopers. It’s a bit more complicated than threading a sewing machine but it’s not too bad as long as you follow the instructions and just take it slowly. On the Tuesday I decided to make a large box cushion for the dogs wicker basket. I have been meaning to do this for ages but the fabric I wanted to use had a really horrible habit of fraying quite badly. On all the cushions I had made out of it I had to use an overcasting foot on my old sewing machine to ensure that the hems didn’t fray. The overlocker made the job really neat and tidy. I used it to neaten all the edges of the fabric before sewing it together on my sewing machine (using a jeans needle as the material is quite thick as it is upholstery fabric). I finished the back of the box cushion using kam snaps so that it can be taken off and put in the wash.

 

 

I have also been working on some hand sewing and making a quilt using a technique called English Paper piecing. This is where you use paper or card templates and either glue / sew baste ( tacking stitch) the material around the template. Then you sew the templates together to create whatever design that you want. I am using  Octagons and small kite shapes to join them together. On the top I am using small triangles to straighten the top edge and doing the same down one side. My plan is to have 100 Octagons on it and it is for Mr Myasthenia Kids bedroom. I am going to use an old star wars duvet to back it. I am using all my scrap materials to make it and I am finding it very therapeutic to sit and sew in the evenings / afternoons.

 

 

 

I also made the second piece of clothing I have made. A Julia Top, unfortunately it is too big and too short but it was a trial run. I am thinking of turning it into a jacket / cardigan. I used my overlocker and sewing machine to make it.

Sorry this week is a bit of a mish mash of stuff that has been going on over the last few weeks. My mood is still very up and down but it isn’t the crushing lows I have been having and my anxiety is settling down becoming easier to manage. So this week is a week of bits and bobs.

Reviews

I don’t tend to do product reviews and I am always highly suspicious of bloggers who are always saying how wonderful a new product is, failing to mention they have been provided the product free of charge in return for a favourable post.

 

I am also quite hard on products and I am acutely aware of what may work for me may not work ( or even fail miserably ) for others. However when I do find a product that works well for me I like to share. Now I just need to make it clear, I have paid for these products myself and I have not been asked to provide a review for them. I am just sharing these products with you because I know many of you who read the blog have the same problems as I do and they may help you.

 

The first product is the icloudy pillow made from memory foam. I have included a link to Amazon as this is where I purchased it from. At £35.99 I am aware its not cheap, particularly for those on a limited income. For me it’s been worth every penny.

 

Icloudy pillow at Amazon

 

I have bought many different neck pillows over the years in an attempt to stabilise my neck whilst sleeping. Due to EDS (Ehlers Danlos Syndrome) I have terrible problems with my neck being unstable, a physio once described me as having an owl neck, as I can twist my head around so far. I wake up with horrendous headaches, stiff neck and just in an awful lot pain. I have said to many doctors that a lot of my headache issues and possibly my leak have been caused by my necks instability. Unfortunately in the UK this seems to be an area that is completely neglected by the medical profession when it comes to EDS. With many EDS patients facing the choice of raising hundreds of thousands of pounds to have surgery abroad or face a slow agonising death. Now I am nowhere near that bad thank goodness but a few weeks ago I woke up in agony. My head pain was so bad I was convinced that my CSF leak had returned. I couldn’t do anything as the pain was so severe. I took every painkiller available to me and it just wouldn’t shift. In desperation I took a diazepam (which I had been prescribed for anxiety) it was the only thing that worked which thankfully proved to me that it wasn’t my leak coming back. You have no idea what a relief it was.

 

Over a few months my neck had become increasingly painful, sleeping which should be a comfortable and relaxing experience was leaving me racked in pain. I was already using a memory foam neck pillow but it wasn’t doing anything for me. The only relief I had found was sleeping with just a rolled up towel under my neck but due to EDS causing reflux, it was a no no, as I kept waking up choking on my stomach contents. I also tried lifting the head end of my bed and sleeping on a rolled up towel placed under my neck but again…one night was fine but the following night my lower back and pelvis were extremely painful due to the angle raising the head end of the bed was placing them in. Out of desperation I searched online for a different type of neck support pillow. I needed one that supported the natural curve of the neck but also dropped my head back rather than it all being on the same level which is completely unnatural. After a good look I discovered the Icloudy Pillow, which was shaped completely differently to any pillow I had tried before.

 

Side view

View from above

As you can see the centre of the pillow is the lowest point so it allows for the curve in your neck (my curve is completely reversed). The difference has been incredible. The first night I thought it was a fluke, my sleep was totally different and I didn’t wake up in the night with pain radiating from the back of my head to the centre of my shoulder blades.  The second night I had a bit of pain from lying so flat, so added one wafer thin pillow on top of the icloudy pillow to see if that helped and it did. I woke up again pain free. In fact every day since using this pillow I have woken up without my usual headache and neck pain.

 

I still have to be really careful moving during the day, today I have managed what I call a crick – I am guessing normal people may call it more than that. So I have pain in the base of my skull and at the top of my shoulder blades. I can live with that, its no where near as bad as a leak headache. My quality of sleep has been completely altered by using this pillow. I can see now why it gets so many good reviews. The good news is that it will also fit in a standard Oxford pillowcase so no special case is needed for it.

 

Now as I said I am suspicious of bloggers who gush about products without making it clear that they have received financial compensation for doing so or received the product free. I never get free products and wouldn’t feel right gushing about a product that I think is shite. So if I tell you about a product it is because it worked for me and it may possibly work for you.

 

Those of you who follow my blog will know a few weeks ago I took a tumble in the snow. At the time I wrote about the fact I had hit my head and that my legs were really sore. Well I obviously had distracting injuries as a few days later I was noticing that it was very sore to sit down for longer than about 10 minutes (not good when you love to sew and even worse when standing makes you want to faint). I realised I had damaged my coccyx in the fall. I was quite plain speaking when I told Mr Myasthenia Kid how it felt “ Like someone has hit me with a shovel between my arse cheeks” – don’t say I didn’t warn you ha ha ha! It was very painful and very frustrating as I was only comfortable lying down but my back hates me lying down.

 

In desperation again I wondered if there was such a thing as a support cushion for your coccyx. Again on Amazon I stumbled across the Supportiback pillow –https://www.amazon.co.uk/gp/product/B01MF52K0I/ref=oh_aui_detailpage_o04_s00?ie=UTF8&psc=1

At £29.87 it’s not cheap, but when you can’t sit down without being in a lot of pain and you can no longer do the thing you are completely addicted to – sewing, then believe me you’ll pay any price to no longer be in pain. The great thing is with the cushion is the size, I won’t lie currently I am wide of hip so need a large cushion, this doesn’t disappoint. I have taken the photo on my kitchen chair which is a standard Ikea chair.

 

The hole in the back is placed underneath the Coccyx so that no pressure is applied.

 

It’s made of memory foam and has a gel surface to it. It moulds to your body contours and it has also relieved the pressure I feel on the backs of my legs when I have been sat for a while. I also like the fact it is breathable so it doesn’t leave you feeling hot and sweaty when you have been sat on it for a while. The difference for me was night and day. The cushion also doesn’t slip and slide so feels completely safe when you are getting up and down. I only noticed this morning when I took a photo of it that it has a handle on the side to carry it. I am contemplating buying another one for me to use in the car, as that is now the only seat that I feel very uncomfortable on. With the cut out at the back of the cushion there is now no  pressure being applied on my coccyx which is also allowing the injury to heal much faster now. I read in a lot of the reviews that people were also using these as cushions in their wheelchairs and mobility scooters which is another excellent idea.

 

So no more numb bum or back of my thighs when I have been sitting at my sewing machine.

 

I hope you have found my reviews helpful and if you have any questions about either product please don’t hesitate to get in touch or use the links in the post so you can read the reviews left by Amazon customers.