The Royal Wedding 29th April 2011

I am so proud to be British, I don’t say that kind of thing very often. However I think we pomp and ceremony rather well in this country and I have thoroughly enjoyed the spectacal.

The day started for me shortly after 7am after being aware for several hours that hubs was awake and already watching the television coverage. If you met hubs you would never think for a moment he was such a royalist. Its crazy but he has been so excited since the engagement! I suggested back in November 2010 that we had a small party but he said no. Then when the idea was suggested again it was given the green light.

Yesterday Hubs worked like a trooper doing the cleaning and getting the house ready for our guests. After he had done all that he then helped me in the kitchen as we prepared our home made Beef burgers, Red Thai Curry Chicken Burgers and Fish Burgers. Plus a variety of salads and side dishes. As usual instead of catering for 8 the amount of food would have fed forty! Hubs will be eating the chicken burgers for sometime to come!

I wondered down stairs at around 730am. I have to drink around half a pint of water in the morning before I get up to boost my blood pressure. Otherwise I can have a flaky time of it and feel like passing out. Hubs was super organised, the house was spotless, he had showered, shaved and dressed. He had even ironed his outfit. He doesn’t iron…..ever! He never shaves or has a shower on his day off work. His response when I questioned his enthusiasm was “if I can’t shower and shave on the wedding day of our future king its a pretty poor show!” I started to look around to thank the aliens that had obviously abducted my husband and replaced him with a doppelganger!

I was then handed a cup of tea and a yogurt along with my morning tablets. The morning tablets I always forget to take until Hubs reminds me at lunchtime. So where had my husband gone? I was then told I had to sit and rest as nothing needed to be done. Wonderful, I don’t know about Catherine Middleton but I was starting to feel like a bit of a princess!

At 8am P&P shouted over the fence as they had some bunting, flags and tea towels going spare and hubs then set about decorating the garden and the front of the house. I wasn’t too optimistic at this point that the BBQ would be happening the skies were pretty dark and the wind was freezing cold! Once the decorations were done it was time for another cup of tea….. how very British! We sat and watched the TV coverage with Hubs updating me with what had been shown before I got up. He had been up since 4am due to taking the dogs out and then being too excited to go back to bed.

At a little after 9am the first text message arrived that sent me int a panic! C’s message said she was nipping into the town centre and she would be with us shortly. The agreed time for our guests arrival had been 1030am. I was lounging on the sofa feeling smug that everything had been done and I didn’t have to move until 0930am. My resolve was I wasn’t moving until I had seen the Beckham’s enter Westminster Abbey. Within minutes of receiving C’s message the phone went off again, this time it was my sister it read “have seen the Beckhams I am on my way over”. What is wrong with people normally everyone is late, normally I would be waiting for them! Panic stations, the rest of my third cup of tea is slurped down and I head off for a shower.

At this point I haven’t decided what I am going to wear, I have informed the guests the dress code is red, white and blue, but other than Jeans and a red polo shirt there isn’t much of a wardrobe choice with these colours! I decide that as I am the hostess I will wear what I like, I opt for a Betty Jackson T-shirt and Linen Jacket in teal along with my jeans. As Hubs has nicked my tiara and has been wearing that for the last few hours I go to plan b, which is to wear a black fascinator in my hair and some nice jewelry. Thankfully before the rest of the guests arrive my sister wrestles the tiara off him and she wears it! My sister arrives whilst I am in the shower and Hubs is ironing my outfit. The morning of luxurious calm has been shattered as the  guests all decide to arrive by 1010am, not the 11am I had envisioned!

There was quite a bit of arguing over which TV station we should watch, the majority of us felt it should be the BBC rather than Sky. Hubs had the remote and it took quite a bit of persuading to get him to take it off Sky!

We had an absolute lake of soft drinks and alcohol in the house and all we drank were cups of tea! We all loved the coverage and we felt that both Prince William and Kate Middleton looked lovely. I felt immediately that Kate’s dress was very similar to Princess Grace of Monaco’s. I kept coming out with all these facts about the royal family, royal protocol etc and our friend AC was amazed. He said where did you find all this information out? I told him I read a lot, I studied history and I love Royal documentaries. Bless him he told me I should go on Mastermind! I couldn’t as my memory is terrible for dates! Its just my mind works in an add way the more obscure the fact the better the chance is that I will remember it. After that they said I was the royal correspondent so whenever the commentary when quiet on the TV I had to do a voice over!

When they were pronounced man and wife we raised a toast with a glass of champagne! As there were eight of us the bottle didn’t stretch far but as the majority of people were driving it was enough for several toasts. It was very nice Champagne, normally I don’t like the stuff but this was good!

At 1340, after the kiss on the balcony hubs and AC fired up the BBQ and 30 mins later the great cook off began! The food went down a storm and we were well and truly stuffed! C and AC brought desserts to save hubs and I having to do any more prep. AC brought a delicious moist chocolate cake gorgeous with double cream we had that around 4pm. C brought a selection of Waitroses finest, an apple tart, a Key lime Pie and GU Chocolate mouses. Our guests were spoilt for choice! Obviously desserts were followed by more  cups of tea!

Our guests left at 5pm after spending a wonderful day with us. The dogs behaved brilliantly and enjoyed all the fuss they received from our visitors. It was one of the best events Hubs and I have ever hosted. The guests all got on and enjoyed lively conversation. Especially at 3pm when we put on My Big Fat Gypsy Wedding that we had taped the night before. That really got the debate going!

A wonderful day, with wonderful company and wonderful food. Thank you xx

Temporomandibular Joint Disorder – TMJ

Its 1230am I can’t sleep, I have taken every painkiller available to me and I have a hot water bottle clamped to my face. So whats keeping me awake? Its a condition called Temporomandibular Joint Disorder or TMJ for short.

http://en.wikipedia.org/wiki/Temporomandibular_joint_disorder

Very basically I have pain in the jawbone joint just in front of my ears on both sides. The pain is travelling right around my jaw, causing my teeth to hurt. I get flares of this very so often and it usually settles quite quickly. However this is the worst pain I have had with it. I am wearing a dental night splint as I am typing this as I do have the unfortunate habit of clenching my teeth. The night splint is there to stop me biting down. I haven’t been aware that I am doing it and since wearing the night splint I haven’t noticed my teeth bouncing off the hard plastic. My jaw feels out of alignment, my bottom jaw feels like its protruding further than my top Jaw. I have checked in the mirror it isn’t but obviously something in the joint is inflamed and sending crazy messages to my brain.

Tonight it became quite difficult to talk again as I was struggling to open my mouth. Thankfully I managed to eat my dinner, I would of cried if I hadn’t been able to Ive been so hungry all day!

I have had this condition for years but it was only properly diagnosed last year by my new dentist. When she examined the joint the pain was so intense you could have peeled me off the ceiling! Most of the time I have a clicky jaw which will be triggered by eating something like a baguette – so I try and avoid foods which are hard for me to chew. Sometimes it will make an almighty crack when I yawn!

As usual there is treatment but no cure. Apparently there is treatment but no cure, pain killers don’t tend to work (and don’t I know it) as a lot of the pain is neuropathic. I have found a good website though
http://www.tmj.org/site/ an American site that has some good information on it.

So for the next few days it looks like my diet will consist of soup, mashed potato and gravy!

Jan

As promised I went to visit my friend Jan who is in her early forties and has a horrific type of MS. Jan lives in a nursing home as she requires 24/7 care.

Jan



Jan and I met in the late 1990’s and we hit it off immediately. I liked Jan because she didn’t treat me any differently just because I was a Manager. As a manager I found some staff just brown nosed you all the time and tried to manipulate you to get what they wanted, whilst others just wouldn’t speak to you either because they didn’t like managers or they were just intimidated. It was a real shame as I worked hard to be fair and consistent with all members of staff. Jan was different she didn’t care that I was a manager we spoke as equals and had a laugh about life, work and anything else that we could take the mickey out of.

We didn’t see each other outside of work until much later in our friendship. Jan had been ill health retired from work, her MS suddenly deteriorated overnight and she could no longer walk. She had persevered at work despite being in horrendous pain and her sight deteriorating. At this point no one really knew what was wrong with her. Some Dr’s suggested it was stress or just all in her head. It took until she could no longer walk for the Dr’s to diagnose that she had MS and it wasn’t the kind where she would have any remissions it would only get worse.

When I became too ill to work in 2008 I was clearing out some handbags and came across Jan’s telephone number. I rang her and we chatted for over an hour. We started chatting a couple of times a week and then it became everyday. I would try and get to see Jan at least once a month. Then all of a sudden I couldn’t get hold of Jan and she had been taken into hospital and she never went home after that.

In 2009 we ended up in hospital at the same time, on the same ward in beds next to her. Jan was pretty poorly but she was still a feisty bird. It was the most enjoyable hospital stay either of us has ever had. It was a pretty rough time for both of us. Jan was waiting to be admitted to a rehabilitation unit and I was in for tests. We ran rings around the nurses and generally caused as much trouble as we could just to amuse ourselves.

She tried the various MS drugs but nothing helped. The MS was waging war against her body and she had no way to fight it. However Jan wasn’t going to give up easily and fought it tooth and nail. She liked her independence and that is what she has found so hard to give up as she can no longer care for herself. She spent nearly a year in hospital before she was well enough to move into a nursing home and that’s where I went to visit her today.

I explained to Jan about my blog and said I could take her picture and put it on my blog. She asked if she would be famous and I said indeed she would now be famous! So to honor her wishes Jan is now on the Internet on my blog.

I spent three hours with Jan chatting about the dogs, people we both know and our old place of work. Jan doesn’t get many visitors and I got very upset today when she told me I was the best friend she ever had. I feel I let her down badly by not being able to visit her, due to my own poor health. I do write to her at least once a month but she is so isolated. Her family visits but there are only two people that visit her from work and she was friends with a lot of people. Her situation is a lot like mine but at least I have the Internet, Jan’s sight is so poor that she couldn’t see the computer screen. Her hands have contracted like claws and she wouldn’t be able to type, her speech has also been affected so voice recognition technology isn’t an option either.

The staff seem very nice at the home although a little busy. Its a nursing home so its patients suffer from a variety of ailments mainly dementia so its a little noisy too. Jan’s room is full of photographs and her beloved snoopy collection. It has a lovely view over the garden. Its a nice place, bright and cheerful and much better than the village hospital that she was in. The room she had there was more like a prison cell.

Jan has deteriorated in more ways than I had  anticipated. Jan was always really mentally alert and funny. Today she was a shadow of what she once was. Initially she seemed like the same old Jan, for about 20 minutes it was all as it would always have been, both of us in fits of laughter. Then she asked me how I was getting on in my flat. I realised then that she was having memory problems. I moved from my flat over 7 years ago, Jan knew that. She couldn’t remember if hubs and I were still together, she did remember I had dogs though. We spent 3 hours chatting sometimes it was about things we had talked about earlier, I didn’t care it was just good to see her. She enjoyed the visit, I think it was the longest visit she had ever had. Time flew by and I knew Jan was starting to tire so I called hubs and he came and got me.

It was bitter sweet today. I loved seeing her but it also made me very sad that a woman in her forties life has been destroyed by MS. Jan was a hard worker and very comical. It was just so sad to see, but she still has her sense of humour and winning smile as you can see from the photo.

So Jan, you are famous as promised you appear on my blog.

With Love
Rach xx

The Garden …..

Europas Pectinatus

                                                            

Celosia Venezuela

                                                              

I thought I would take the plunge today and see if I could upload pictures to my blog. It’s something I have never done before!

So here are pictures of two plants that we have potted up this week! Exciting stuff! I will add  a selection of pictures when the garden has more flowers at the moment this is the only real splash of vivid colour.

It’s not as warm today as there is bit of a sea breeze blowing. This is probably going to be the last day I will be able to sit outside for a while as tomorrow the forecast is for rain and thunder storms! Typical British summer really but then it is only April.

We have been sat in the garden today chatting to the neighbours. P&P chucked some hot cross buns over the fence for us to scoff! That was followed by two fab ice lollies a few hours later! They have been invited to next Fridays BBQ. We have brilliant neighbours, P&P are the people that helped us the day of Jays crash. I know day or night if I need help they would come to my aide. It’s nice knowing that with my family normally over an hour away.

 I haven’t eaten an ice lolly in over twenty years as I have a thing about the wooden sticks. I ate the fab lolly out of politeness knowing if I had a taste of the stick I could feign dropping it on the ground and letting the dogs eat it! I actually really enjoyed it and it appears that I have got over my stick thing! I’d like to try a magnum next as I have never had one of those!

Ma and Pa popped in again today. Dad said mum was too tight to buy a cup of tea at Budleigh Beach. I know that isn’t true they just like any excuse to pop in and I love them for it. Is it wrong to say you adore your parents and love their company? I hope not as this is how I feel about mine! Mum has no Internet access at the moment so she wont get to read this for a few days. Then she will get all emotional bless her. I can’t help it if I love my mum and dad! xx

We are hoping its nice next Friday for the Royal Wedding as we are having some people around to watch the wedding and then have a barbecue lunch after. We a going to make our own beef burgers and Thai Chicken burgers. I won’t be partaking in the burger fest as I am vegetarian, well actually I eat fish so not strictly vegetarian. So I am going to make some fish cakes for myself if I am up to it. If not it will be a frozen Mexican bean burger. Hubs is day off before so we can do a lot of the prep together after my Dr’s appointment – the one where I will have to beg to get a private referral!

Pain wise it’s bearable today, TMJ is playing up so its painful for me to open my mouth and speak – some husbands get all the luck. The pain, well some of it is my own fault, I don’t like taking tablets as I actually rattle when I walk, so I try to limit them, plus the more you take the less effective they become. The problem with this is you end up in so much pain that it gets difficult to get on top of it. So its a difficult dilemma.

DOG WASH!
 On a happier note the dogs were bathed today……….. and hubs! Willow was an angel

Willow

                                                            (her best angel face!)
She had her bath and no complaints! Mollie wasn’t too keen but allowed Hubs to get on with it.

Mollie

                             (Mollie is the only dog out of all three who loves to sunbathe!)

 Frankie or Frankenstein as he is also known was a little demon and had to be chased around the garden with the hosepipe!

Frankie

(Frankie with dumbbell and toilet roll tube in his mouth so the girls can’t have them, looking like butter wouldn’t melt!)

So what’s the bet that as soon as they get up on the common tonight they roll in something revolting now that they all smell of evening primrose!

Another glorious day

Well its been another beautiful day here today. A few rumbles of thunder in the distance but thankfully nothing close enough to bother the dogs. They are complete cowards when it comes to loud noises, but it only seems to affect them when they are in the house. They are quite happy to walk past a firing range or firework display when they are out of the house. I can’t work out why when they are in the house it bothers them so.

Mum and Dad delivered to me 3 passion flowers today, one purple, one white and one purple and white, Hubs has potted the two for the back garden and will plant the last one in the front garden tomorrow. We have had a wonderful passion flower outside the house for 7 years but unfortunately two hard winters were just too much for it and it gave up the ghost. It was such a lovely plant and used for flower for months. We lost quite a few plants this winter, although it wasn’t as cold as the previous year the snow lay on the ground for well over a week.

On top of the passion flowers they delivered 2 loaves of bread and a packet of migraleve. Last night I had the most hideous migraine ever. It was actually worse than the one I ended up in hospital with in 2009. It was one of those that had a really slow build all day. I really didn’t feel great all day yesterday and I had a bit of a headache, the headache was manageable in fact I didn’t even take any painkillers for it. Then by 2330 last night I couldn’t stand any light or any movement of my head. I knew I needed to put a hot water bottle on the back of my neck. This was a trick my family GP told me to do years ago as she said migraines make the blood vessels in your neck clamp down, by placing heat on your neck it makes them open back up again. I have no idea if this is correct all I know is it works for me.

There was no point shouting to my husband to try and wake him up as he had a fan going in his room and he wouldn’t have heard me. We sleep in separate bedrooms and have done since 2007 when I first became ill. Mainly because my sleep patterns are so erratic sometimes sleeping, sometimes having insomnia, sometimes wracked in pain. He also snores very, very loudly so its just easier if we sleep apart. It is essential for both of us to get the best quality sleep we can and by sleeping in separate rooms we can do this.

So I had to text message him! My room was pitch black and using my phone burnt the back of my eyeballs with the light, but I knew I couldn’t lift my head up or I was going to be sick. It took only two text messages to wake him – pretty good going! The first one had my request for a hot water bottle the second one I just sent a blank message, I just wanted the noise to wake him up. It did the trick and a hot water bottle was quickly brought to me. Its amazing what you can use to wake someone up these days!

Oh the relief a hot water bottle brings! I could then get the anti sickness meds down me as I could sit up. Hubs had got them out for me but I just felt too awful to take them. I then managed to get some sleep, it wasn’t great quality sleep as I was having strange dreams. I kept dreaming that I was awake, that one really bugs me as when you wake up you don’t know if you have been asleep or not. I sleep with the radio on and that helps me work out of I have been asleep. I see if its the same programme I thought I had just been listening to, that way I know it was a dream that I have been awake.

Today I was left with a bit of a migraine hangover. However I am confused if it was a migraine as my neck has been very weak all day and I have had to wear my neck collar as I can’t hold my head up. My neck feels like its being compressed, like there is a weight sat on top of my head pushing my neck into my spine. It sounds strange I know, it feels very painful. The headache that I have had today has been relieved when wearing the collar and comes straight back when I take the thing off. So was it a migraine last night or a pinched nerve causing the headache. I don’t think I will ever know. I just have to be grateful for the fact that I got some relief.

In fact hubs has just been sent to get me another hot water bottle as the pain in the back of my neck / head is starting again! Luckily he wasn’t asleep this time and a simple shout was enough to get his attention!

I’ve now got two days with hubs being home which will be great but after the week he has had I imagine he will sleep for a good few hours over the weekend. It never bothers me letting him sleep as he works hard at his job, looking after the dogs and then looking after me. Its an exhausting job being a carer so when he gets the opportunity to sleep he grabs it with both hands!

 At some point over Easter I want to go and visit a friend of mine who has really bad MS. She lives in a nursing home and she is in her forties. MS has left her paralysed and virtually blind and deaf. I think that I have problems and then I remember JG and count my blessings.

So to all my followers and readers wishing you a happy Easter, Passover or what ever you want to celebrate xx

Good Friday 2011

I’ve had a rubbish week, the heat has really kicked the POTs up a gear and I am no longer sure that the florinef (steroid) is actually doing anything.

This morning I awoke to my eyelids and under my eyes so swollen I could barely see. I popped to the loo and looked in the mirror I looked like kermit the frog. There were just little tiny slits where my eyes should be. I had to go back to bed and wait an hour before I could see! So the florinef is making me retain fluid, I know because my weight is going up and down by as much as half a stone on a daily basis. I am struggling to get my shoes on and my hands are extremely puffy. All in all I look great! But unfortunately I think that’s all it is doing.

Even with me retaining fluid I am still urinating at least twice an hour. I keep meaning to count the number of times I urinate in a day but I actually lose count. I am up at least 4 times in the night to urinate. I would love just one nights sleep that wasn’t interrupted by pain or urinating or night sweats!

 I know I drink a lot I have always suffered with excessive thirst. I have been tested for diabetes more times than I have had hot dinners, its always negative. I drink between 3-6 litres a day, but I am still dehydrated, my fingers are wrinkled like I have had a long soak in the tub and the skin on my face also shows quite clearly that there is not enough fluid in my system. My mouth and eyes are always dry no matter how much fluid I ingest.

We are holding off increasing the florinef for a bit as I got so poorly one week after starting it. I am now around 28 days in and other than looking like the Pillsbury Dough Boy it doesn’t feel like its done a lot . Initially I thought it had made a massive difference as I could bend forward without feeling dizzy, that’s now come back. My night sweats seemed to have stopped, now that’s come back. My heart stopped feeling like it would come out of my chest when I went up the stairs………yep you guessed it!

So today is Good Friday a Bank Holiday in the UK and my parents are up in their caravan, hubs is day off and its nice weather. Ma and Pa came over for a visit and it was lovely to see them. I don’t get to spend as much time with them as I would like. I can’t really travel and my mum is also my sisters carer. We speak everyday on the phone at least twice a day, but its not the same as being together.

My parents took me out today to buy some plants for the garden. Hubs had prepared all the pots on Monday ready for them to be planted up, so the garden has looked a bit weird with rows of empty pots full of compost! It wasn’t actually too busy at the shop and I managed to pick up some trailing lobelia, ( or labia as my husband calls them, its been a standing joke for years after he rang his mother up and told her he had been planting labia’s. I only pointed out his mistake after I had text messaged everyone we knew! He’s never lived it down. Even the neighbours tease him about it! An honest mistake but hilarious), some begonias as the slugs don’t seem to like eating them. I also got some daisy like things – bright yellow, a lovely purple broom and some bright purple plants that I can’t remember what they are called!

I like a lot of colour in the garden as we don’t have a lawn. With us being near Exeter the soil is very heavy and clay like. The soil is bright red and with three dogs running about on a lawn everything would be stained bright red. Plus our garden is north facing so in the winter it gets very little sun so when we first moved in the back garden was like a bog. So we put in decking which is nice and easy to keep clean and the dogs don’t bring any additional mess into the house.

This year I am not growing any vegetables as last year was so disappointing. The runner beans produced loads of flowers and then only a handful of beans, Mollie ate the strawberries and helped herself to the radishes! The caterpillars ate all my salad crops, we also had horrific amounts of black fly. I had never known a year like it for pests and that includes Mollie!

I don’t have the energy this year for doing a lot of gardening and the garden looks so bare in the winter I wanted some plants that would provide some greenery throughout the year. So this year I have gone for lots of flowers and no colour scheme, just lots and lots of colour. Since getting the plants in the pots earlier on today and giving them a good soaking some have already come into flower and the lobelia (or labia) looks like its grown. I now just need to guard them against Frankie watering them and inadvertently killing them off! It maybe good for the tomatoes but the other plants just don’t agree!

 I have been enjoying lying on the lounger in the sun, reading and chatting with the neighbours. So when those plants get going its going to be stunning!

Special thanks to Mum, Dad for taking me to get the plants and to Mum and hubs for planting it all up and making it look great.xx

Social networking……..the positives and the negatives

This post has come about due to some of the behavior I have seen adults indulge in whilst using social networking sites. Some of it really has to be seen to be believed.

I use face book and twitter. I enjoy using them, mainly because it allows me to come into contact with the outside world. Being pretty much housebound its amazing how people that you thought were close, loyal, true friends forget you even exist. By having my own face book and twitter profile people can’t forget me! It keeps me in the loop and I have cultivated many friendships with people that I knew through work etc but didn’t really know.

I don’t allow face book to take over my life, I don’t allow the chat function (where people can instantly message you) as I want to be in control of the amount of contact I have with people. Plus there are some people that I am happy to have as a “friend” on face book, but I really can’t be bothered actually having a conversation with them. If that makes sense?

I have over 300 friends on face book, but the majority of them are friends in the very loosest sense of the word. Most I have accumulated through working from the age of 16 – 34, I have only one friend from university, several childhood friends, family but the rest are really colleagues.

Without an medium like face book my life would be a lot more isolated. I have my forums that I am a pretty active member in, but most people on those like to remain faceless and unless you are talking about a particular medical condition you don’t really get to know them. So there are positives to face book.

However I am glad that it wasn’t around when I was growing up. I was pretty devastated at the age of 17 to find out that a group of girls at my work place had started a “I hate the Rachel ………. club”. It was pretty organized and had a secretary and treasurer. This club was started because one of the girls at work had a boyfriend who also worked at the same place. He and I used to go to break together, being rather naive I thought nothing of it. I didn’t really know anyone there, the girls weren’t particularly friendly and the boys were so I would chat to them and take breaks with them.

 Can you imagine what would happen if the Internet had been available to these girls. I would imagine a group would have been set up on face book or I would have had abusive messages posted on my profile. The girls were older than me and would have been legally classed as adults. But this behavior doesn’t stop at 18 it continues and what I have witnessed recently makes we wonder if I should continue with face book?

Over the past few months I have seen people accused of theft, without any actual evidence. Now that was an interesting post to follow! The situation was only resolved when the person making the accusations apologized to the people accused, admitting they had no evidence to base their accusations on.

Last week I saw a bitter feud develop between 2 good friends, a feud that I am afraid will never be resolved due to the comments posted on the page. The initial motive of the first comment, which started this feud off was purely one of concern, however an open face book page is never the place to voice such concerns. The argument spread so that it included family members and the legions of fans one of the two people involved has. People that weren’t directly involved ended up adding their two cents worth and the whole thing got very ugly, very quickly. The argument went on for over two days, with the comments getting nastier and nastier. Although the gossip in me enjoyed the spectacle initially, it dawned on me that what I was witnessing was a very ugly side to human nature.

I was amazed what people felt was legitimately OK to post on face book about people they had never met. However if you want a real eye opener read the UK’s Daily Mail on line and read the comments people put! I can’t believe that there is such vile hatred being uttered about individuals that are completely unknown by those that leave comments. The disabled and anyone on benefits seem to be fair game for these people.

I won’t take sides in the argument as neither sides actions are without blame. Some silly childish comments were made that left no one looking innocent. People seem to lose their inhibitions on social networking sites and act in haste, rather than taking the time to think about the consequences of their actions. I have been guilty of that myself with my blog and now take a much more considered approach when posting.

The consequences of posting one comment is that now two friends are no longer speaking, but its bigger than that. Its now two families are at war with each other, with actions now taking place outside the Internet and solicitors becoming involved.

There is a time and a place for things to be said but should face book be the medium you chose?

OK rant over! Just a quick update on me. The hip is still causing me problems but not to the extent that it was before. If used too much it is becoming painful so its a careful balance between activity and rest at the moment. My stomach problems are starting to come back after around a six month leave of absence! I am swollen every day at present, so having to wear loose fitting clothes and making sure there is nothing directly pressing on my abdomen. I am now having to take anti sickness meds pretty regularly to try and dampen down the urge to vomit. I have started to lose my hair again, great clumps of it are coming out. Thankfully I seem to be shedding hair from all over my scalp and have no obvious patches of hair loss.

The heat is killing me and making me much more symptomatic. In the UK we are having a mini heat wave for this time of year with temperatures in the 70’s, (22-25 degrees centigrade) and yes that is enough for me to feel much worse. I love the warm weather as I am like a reptile I only feel warm in direct sunlight, however the heat is also my enemy. I can’t win!

So that’s all for now. Thank you for reading xx