Thank you

I am just dropping by to say thank you for your lovely comments and support. I’m still pretty rough and using the computer is difficult.

I contacted my hospital consultant yesterday unfortunately he is on leave this week and will be back next week. On his secretaries advice I have contacted my GP. I wrote a letter to him as I didn’t want to run the gauntlet of the reception team. I managed to write the letter and forget to put my name and address on it! I feel such an idiot but my brain is refusing to work when I am sitting up. Luckily he has only 5 Pots patients and I am the only one under my consultant. So hopefully he does a Miss Marple and works it out! If I don’t hear from him today I will write him another letter explaining my mistake! Remembering of course to put my name and address on it!

Thanks again for your support xx

Hey its me!

Again I have been absent for quite a while. Unfortunately my health is on the slide and I have basically hardly been out of bed either through pain or through pre-syncope episodes. (pre-syncope medical term for starting to faint or feeling faint and not actually fainting).

 After a great deal of discussion hubs and I have decided that its time for me to contact the hospital Pots Dr as things aren’t getting any better and are in fact much worse than they have been for a long time. What he will actually be able to do is debatable but I can’t manage like this. Even standing for a minute or so is sending me into the spins. When I have been standing I am walking around like a drunk as I am so dizzy. I don’t know whether the chest infection has sparked this off or its just one of those things.

Even sitting here typing is making my head feel very strange, it feels like its moving to the left! How bizarre.

On top of all this I am also suffering with a bad HS flare which has been extremely painful. I currently have two abscesses on the go. One is actually healing so is less painful but I developed a new one yesterday and the process of sitting down is making me scream out loud! I can’t wait for it to pop to get some relief. It sounds disgusting and it is, but the relief when they pop is unbelievable.

Most of my days lately have been spent in bed watching DVD box sets or  listening to the radio. I listen to the radio once my vision starts to become double. It can be frustrating but I try and rise above it.

A friend asked me how do you manage to keep yourself in good spirits, to be honest I have no idea. At the moment I am angry and just feel like I can’t let this beat me. I haven’t had any why me days in the approx six week period when this downward spiral started. I am luckier than most people, I don’t have kids so I don’t have to force myself to get up and do things to look after them. I don’t have the worry about working as I haven’t worked since 2008 and to this day I can’t work out how I managed to keep going for so long with virtually zero support from the company. I can just be me and if it means being in bed all day so be it. I also have fantastic friends that text, visit or call which keeps me sane.

Over the last 6 weeks I have neglected my Internet friends for which I am sorry but I am hoping you will understand.

Peace and love xx

Back after a leave of absence….

Imagine my excitement today when I realised I was just 4 views from 3,000 hits on my blog! Its amazing and I thank you all for taking the time to read it.

I am feeling loads better after my chest infection but I am suffering with quite severe exhaustion and tachycardia on the slightest movement. My blood pressure has decided to stay very low all the time which is leaving me very dizzy and spaced out. So its been quite hard to do anything much at all over the last few weeks.

For around 4 weeks now I have been mainly in bed watching DVD’s to keep me occupied. I have managed to watch Madmen seasons 1-3 (thoroughly enjoyed it), M*A*S*H seasons 1-11 (loved every minute of this). I had never seen the closing episode of M*A*S*H so it was really good to see it. Hubs bought me the complete box set as a treat. I am now watching Bones season 2. When I can’t get out of bed I do enjoy my box sets and I will watch quite a wide variety of series.

So apart from what I have been watching DVD wise there isn’t much to report. Thanks for reading.

quick update

Apologies for not blogging. Unfortunately I have been quite unwell and for the last week I have barely been out of my bed.

I think I probably have a chest infection which has left me with no energy, really low blood pressure and more myasthenia gravis symptoms than normal. I am now getting double vision in the evening much worse than previously and on a couple of occasions this week I have woken up with both eyes closed due to ptosis.

I am hoping to see the Dr on Monday, hubs is going to arrange a home visit as I am too weak at present to make a trip to the Drs. I am quickly typing this whilst I have some vision and energy.

I hope everyone is ok.