Dry Eyes

I got diagnosed with dry eyes over ten years ago, it could have been 15 years ago, I just know Travis ( our first Weimaraner) was alive then. How I found out I had dry eyes was due to the fact a cigarette end had blown into my eye whilst we were in the car. The agony it caused I will never forget. I had a burn to my cornea and thankfully no lasting damage but a few weeks later my eyes were feeling very sore so I took myself off to the eye infirmary where I had a few tests and found out my eyes were incredibly dry.

On and off for years they have been treated ( very poorly) with the first line treatment for mild cases of dry eyes hypomellose. That treatment in all the years I have been taking it does nothing, the liquid evaporates off my eyeball in a matter of seconds and I am back to the sore, itchy burning feeling I basically put up with 24/7. On the odd occasion when I have made a fuss I am given lacrilube to use at night, which is alike vaseline for your eyeballs. It is fabulous stuff but it means you can see fuck all for hours once it has been applied so has to be done when you are certain you are going to sleep.

I have brought up with numerous doctors that my dry eyes were getting worse, that I am waking up with crusty eyes that then burn and sting for the rest of the day. For some reason I just haven’t pushed this and have allowed myself to be fobbed off with the excuse that it is my medication causing my dry eyes as if this is in some way my fault. I am now coming off all medication that causes dry eyes – even though I have been put on these after the diagnosis of dry eyes was given.

On Sunday morning I woke up with with my eyelid stuck to my eyeball. That is as grim as that sounds. Only I didn’t twig what was going on until after I rubbed my left eye and it felt like the top surface of my eyeball had been removed. The pain caused my eye to water profusely. I also worked out that this has been happening for months to a much lesser extent, I keep waking up with a searing pain in my eyes, my eyeball has been sticking to my eyelid.

I realised quite early on, that I had an abrasion on my cornea but I just didn’t want to have to go to the local minor injuries unit with the high probability that they would send me onto the eye infirmary. I foolishly thought how bad could it possibly get ? I decided that I would ignore it in the hope that the pain settled because ignoring it has always worked so well in the past. We decided that we would take Dembe up to the local supermarket to give him some experience of dealing with a shop environment, noise and large volumes of people. He handled it like a pro and we were both so proud of him.

He is walking like a dream and has stopped jumping up at me when I am on my scooter. He now sits beside me and waits for me to give him a cuddle.

My eye pain was ok as long as I was 100% distracted, so I threw myself into binding a quilt I had made for Jamie aka Mr Myasthenia Kid. I wanted to get it finished and he wanted it finished and on his bed! I managed to get that done but as soon as I finished and no longer had anything to distract me the eye pain ramped up by about 500.

I actually waited until Monday to take this photo.

We decided we would start watching season 3 of Stranger Things. I sat with a hot compress on my eye because my logic was the heat would help it as they advise a hot compress with dry eyes. I was kidding myself still that the eye pain was dry eye and would settle. I lasted 20 minutes until I asked Jay to take me to the local hospital where they had a minor injuries unit. I knew (well I hoped they still had it ) that they had all the kit for an eye exam, I kept my fingers crossed that they wouldn’t insist on sending me to the hospital and the eye infirmary. As I knew the wait would be horrendous and sitting up like that for several hours would knock me for six.

Jay dropped me at the eye infirmary and he took Dembe out for a walk. I am extremely grateful that I was seen within 20 minutes of arriving. It wasn’t busy but there were other people coming in with more serious issues than I had. I was ushered in but immediately told that they would only do a basic eye exam and then send me to the main hospital as I had Ehlers Danlos syndrome. I questioned this as I knew it was just an abrasion and no need for the trek to the hospital ( one I hate due to a couple of twatish doctors based there). I was informed as the eye is made up 100% of collagen they couldn’t mess about. I was shocked that this nurse was so on the ball with EDS. Normally they are clueless, not their fault if they have never come across it I must add.

I made a few grumbling noises along the lines of its just an abrasion there is nothing wrong with the rest of my eye and that sitting for hours up there would make me much sicker in the long run. I had an eye test which I think I did reasonably well or well enough to convince her I wasn’t in danger of losing my sight imminently. So she acquiesced and did a proper eye exam. The local anesthetic stang like hell, it felt like I had a million paper cuts on the surface of my eye and she had poured vinegar on it. Once the stinging wore off it provided me with a lot of relief as the pain was dulled massively. She had a look at the structure of my eye which was all sound. She then added the lovely yellow stain that they put in and immediately could see I had a superficial abrasion right across the centre of my eye. I hadn’t been able to pinpoint where the pain was coming from my eye hurt and hurt more every time I had to blink. It made sense that it was right across my eye.

Me when I got back from the minor injuries unit. I was given antibiotic ointment, as my eyes were so dry it would provide some relief as it has to be put in 4 times a day. I was made to promise that if it wasn’t any better the following day I had to head to the main hospital and get it checked out. Thankfully it was an awful lot better the following day.

I have an appointment with my gp next week that I had booked for another reason – which I will still be bringing up! By the time I go to my appointment the local injuries unit would have informed them that I had an abrasion on my cornea caused by my eyeball sticking to my eyelid and that my dry eyes need to be treated! However as it is more than a week away I have spent £30 on dry eye ointment for night time to keep my eyes moist and to prevent them sticking to my eyelids again and some much stronger eye drops that should provide more relief than the tap water ( sarcasm but that might as well be what it is) I have been prescribed up until now and that someone saw fit to remove from my repeat prescription list. 

My eyes are still quite uncomfortably dry, I am awaiting my delivery of the day time drops as nothing I have here if I wish to be able to see at all will provide any relief. When people say they have dry eyes unless you have experienced it you would never realise how bloody painful it can be.

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Migraine

I had wonderful plans for what I was going to write this week but at 4.30am I was struck down by a migraine. Thankfully it is on its way out, the attacks have been shorter in duration since I worked out my migraines are triggered by instability in my neck when I am asleep. As soon as I know a migraine has started I put on my soft cervical collar and keep it on for several hours. When I can I add in 2.5mg of diazepam to relax the muscles that go into spasm on my forehead. Although the length of time I suffer with pain has shortened the after effects last all day. I am very limited with screen time. Hence why this is such a short post.

To make up for the lack of words I will spam you some more of Dembe, who is an absolute angel when I am poorly. He stays by my side and will only start behaving like a 7 month old pup once I am up and moving around.

Hopefully normal service will resume next week.

Brave

I don’t class myself as brave although I have had plenty of people in the past tell me I am. Most of the time I am a quivering wreck, my anxiety has been awful of late, if there is nothing to worry about my brain will find something and keep me awake at night about it. Dealing with people, crowds, noise or even just being in the outside world alone fills me with terror. Yes on many occasions I force myself out of the house and attend appointments alone, dropped off outside but once out of the safety net of the car I am on my own. After over ten years of being pushed everywhere in a wheelchair ( I don’t have the strength or the capacity in my joints to move under my own steam without dislocations and severe pain, oh and the risk of fainting) today I took a brave step into the outside world alone and went to my hospital appointment by myself. I have never done this. I have never seen a hospital consultant alone in the whole history of me being sick. This is huge.

Now a few people have got hung up on the fact that I didn’t travel the hours journey to the hospital by myself. Having pointed out the fact I don’t do crowds, loud noise, bright lights or social situations alone, what the hell do you want from me people? Public transport is shit, I just couldn’t have done the journey on my mobility scooter from my town to the city. Taking the bus or train would have meant multiple changes in places I don’t know. I’d have had a fucking heart attack, there isn’t enough valium in the world to get me through that. 

This is the person who freaks out about calling for a taxi let alone getting in one. One small step at a time folks you don’t run a marathon the first time you decide to have a jog, so why the judgement about the fact I didn’t travel alone? It was still fucking huge for me to navigate the hospital alone – one of the biggest in the area, to a clinic I have been possibly twice before ( as it location changed within the hospital).

I also need to point out any medical appointments set off my anxiety and can lead to me not sleeping properly for several weeks before I go. Due to the horrendous treatment I have suffered at the hands of the medical profession in the past. So I may go to doctor’s appointments at the gp surgery by myself and the same for dental appointments but it doesn’t mean I am happy or confident doing it. I hate it. It has got to the point where I just don’t like, feel / safe or comfortable if I have to leave the house by myself. My home is my safety zone where I control the light, noise, amount of people etc

So for clarity I travelled in our car for an hour with my husband Mr Myasthenia Kid and our trusty sidekick Dembe, who is in training to become my assistance dog and a bit of an emotional crutch as well to be honest. We tried to get parked up but there were no spaces, so hubby had to drop me off in front of the hospital, he set up my mobility scooter, helped me get on and left. Yes folks he left, I had the appointment letter in my hand and off I went on my adventure on a mobility scooter I have also never used by myself before – someone has always been with me. So many hours were spent last night panicking about it breaking down, knocking stuff over and getting lost. This hospital is not very user friendly and it is very easy to miss a turn and get lost.

This hospital is one of the largest in this part of the country ( South West of England) . Its main entrance goes on forever shops, coffee shops, stands for charities etc and hundreds of bloody people. Who’s walking speed resembles an extra on the walking dead ( For the uninitiated a Zombie). I am not massively confident on my mobility scooter owing to the fact on a couple of occasions I have only just managed to avoid being headline news in the locality…..once I nearly went over the sea wall because I was chatting and not looking where I was steering and on another occasion I moved the control in the wrong direction shot off the pavement into the path of an oncoming car. Despite the look of abject horror on my face I got a mouthful of abuse from the driver ( and I can’t blame them for that). So my nerves were a little frayed already and I had been having nightmares about old people going down like ten pins in my wake.

It actually went a lot smoother than I had imagined it would. That wouldn’t have been hard though as at 2am this morning, I was going over every possible scenario in my head. Members of staff asked me if I needed help ( that was probably the look of sheer panic on my face) asked if I needed doors held open, lifts held. In fact being alone on a mobility scooter I got more help than when I was with Mr Myasthenia Kid in a wheelchair. Which strikes me as a bit bizarre as even with him we still needed assistance with doors etc.

I checked myself in at the clinic and tried to find a place where my scooter and I wouldn’t be in anyone’s way. One of my major gripes with hospitals is that despite it being quite obvious that people with disabilities will use them, they do not provide waiting rooms with a space where you can park up a wheelchair or mobility scooter where you are out of the way. It seems a bit fucking ridiculous if you ask me that hospitals seem to not think about accessibility when it comes to their outpatient departments. They ram the waiting room spaces with chairs but when you bring your own it’s a bit of a bloody nightmare to find somewhere to park up and not cause a major obstruction for staff and patients. Anyway rant over. I found somewhere that I thought was out of the way and thankfully it was.

My appointment went well, managed to get myself back on some medication to prevent my migraines as the amitriptyline isn’t doing its job, I have had two migraines in the last two weeks. Plus I really shouldn’t be on amitriptyline with PoTs

I managed not to crash into chairs etc as I reversed out of the room and turned outside. I did however manage to get lost on my way out of the hospital. Probably because I got cocky it was easily remedied with reversing and taking the turn I missed. When I got to the foyer I was just getting ready to find a spot to stop and get my phone out so I could ring Jay and left him know I needed to be collected, when I heard him say to Dembe “There’s mummy look”. Dembe was so well behaved, he came over walking beautifully on his lead and then jumped up and gave me lots of kisses. I can’t tell you how glad I was to see them both. I was no longer on my own and I could make my way back to the safety of the car.

It was also the first time since we had started training that he has walked with Jay and me, when I have been using the mobility scooter. He walked beautifully and I could fully concentrate on driving rather than worrying that I was going to run him over by accident.

Today’s travel and navigating the hospital corridors have left me exhausted. I don’t feel particularly brave but I do know this was a big deal. Maybe when I am not so exhausted I will be able to appreciate how very brave I was today.

A hard week health-wise

The last week has been really hard health wise. I haven’t been the sickest I have ever been but I have certainly been sicker than I have for a while. There is no “reason” that I can identify for this other than perhaps the decline in my health that I have been waiting for since we lost Mollie and Frankie. Stress, emotional upset and change can all upset my chronic health conditions and it seems everything wanted to bubble to the surface last week. I did just power on through which now I am wondering if that was the right thing because I am having more and more MG like symptoms this week – shortness of breath, limb weakness etc sorry I should have said my idiopathic hemifacial spasm the latest bullshit diagnosis for my Ptosis, totally ignoring all the other issues.

If I am honest there is only one symptom that has me terrified and that is when I will suddenly and for no reason lose the ability to take a deep breath. No matter how hard I try to suck the air in my chest fails to move. I end up taking a series of short breaths to minimise the panic that rises in me. I have an elephant sat on my chest who is refusing to budge and I know that if I went to hospital my breathing would be ignored and I would be labelled with a mental health condition rather than the fact that there is something going on at the neuromuscular junction which has been proved time and time again with the ice-pack test. Apparently for the latest neurologist I have seen for these symptoms back in 2017 I believe, it is just a placebo effect. Words fail me.

Sunday freaked me out a bit as well. I wasn’t feeling great when I got up and knew there were a couple of jobs that I had to do, then I could sit around and rest for the remainder of the day. Once those jobs were completed I noticed my legs had become exceptionally heavy, like there were lead weights attached. I could walk but it was very slow and shuffling because lifting my feet was taking a supreme effort. I attempted to climb the stairs but that was impossible. I may as well have been sat at base camp for Mount Everest without oxygen, as those stairs were impossible. After attempting three I came back down on my bum and then wondered how the hell I was going to stand up again. Thank god for Mr Myasthenia Kid being home and with it happening on a Sunday. He could help me to my feet and get me to the sofa, plus organise my medication. 

You see I get to take Mestinon / Pyridostigmine Bromide for my PoTs symptoms. I usually dose as follows 7am 60mg, 11am 30mg, 3pm 30mg or 60mg depending on how I am feeling and then 30mg at 7pm. I have to be careful with Mestinon by body is extremely sensitive to it. Too much and I can be twitching all over but mainly my face and it can trigger terrible stomach cramps. It takes a lot for me to take another 60mg during the day but at both 11am and 3pm I ended up taking the full dose because without it my legs wouldn’t work. My legs not working is not a PoTs symptom, it isn’t an EDS symptom either. There is no medical explanation for this symptom, other than the fact the medical profession believe its all in my head. Which is why when my breathing gets difficult I panic. This medical condition that appears so much like MG / Neuromuscular junction disease will be ignored and it could end up killing me. I am lucky, my symptoms are mild but I have bouts like this especially when the weather gets warmer where my body fails to cope. I worry one day I will be so ill that the doctors refusal to think outside the box will mean that I will be killed by medical negligence and that is a fucking scary thought.

I mean if there is nothing wrong with my breathing……why have I had home oxygen since 2009? In the current economic climate of ongoing austerity since 2010 why if I don’t need support for breathing on occasion why has this precious money wasting resource not been taken from me? Home Oxygen can’t be cheap,  I have an oxygen concentrator a machine that pulls oxygen from the air and then feeds it down a nasal cannula at a purer form. In case of power cuts I also have to have a huge oxygen canister in the house, I have to notify the local fire-brigade and I am classed as a vulnerable service user by the people who maintain the power grid. The canister also impacts my home insurance cost. If I didn’t need it I would get rid of it, not only are the canister and oxygen concentrator ugly they are taking up valuable space in my small home. So in an age of cuts to all services who is covering their arse by allowing me to keep my home oxygen? 

Home Oxygen won’t save me if I end up in a full blown Myasthenic crisis. This is where the muscles around the lungs and the diaphragm become paralysed and can’t move so you can’t get the air in as when you attempt to breath nothing happens. In this situation you need to be in hospital on C-pap or Bi-pap or in the worst case scenario put into an induced coma whilst they ventilate you – sticking a tube down your throat and breathing for you ( intubation ).  Today as I am writing this the elephant has returned, breathing is hard. I took my mestinon at 7.30am already my right eye is starting to droop, its seems I may have to take my next dose earlier.

The Myasthenic like symptoms are the worst thing I currently deal with and I am lucky they are mild the rest of the time. Last week was like a smorgasbord of every medical condition I have. My PoTs symptoms were crazy – heat induced despite me upping the salt tablets ( to 8 a day ) there  were multiple episodes of pre sycope ( near fainting). I had vertigo luckily I caught that attack very early so I only had to endure the room spinning for an hour but it leaves me tired and feeling out of sorts. I had a migraine on Friday one of the worst I have had in months. It was actually the first migraine I have had since January 14th ( my last one was the Monday after Dembe came home with us). My Tinnitus has been so loud it has been difficult to hear the TV and radio. I have felt constantly exhausted .

Then there was the joint pain and my right shoulder continually fighting to escape it’s socket. To be honest I have only scratched the surface of what I have dealt with over the last 7 days. I really don’t like to say much most of the time because I don’t want to be accused of moaning but if I stay silent about it people think that you aren’t as sick as you claim you are. You just can’t win, you’re an attention seeker if you say something and a liar when you don’t. It drives me nuts. I stay silent because to be honest it is easier that way. I don’t want Jay aka Mr Myasthenia Kid worrying about me when he is at work, I don’t want lots of platitudes on social media. It isn’t because I think they are false it makes me feel like I am drawing attention to myself and trying to play the sympathy card and that’s just not me. 

It’s been really hard this week being a puppy mum, I love Dembe dearly, I wouldn’t be without him but it is hard work trying to keep him occupied whilst using as little energy as possible. On the whole he is brilliantly behaved but like it is with kids there are days when he can be a little bugger and whilst amusing, it can be frustrating, especially when you aren’t feeling well. He is just a puppy though at a little over 6 months old and over time he will calm down. I guess I was so used to Mollie, Frankie and Willow being older and more sedate this has come as a real shock. Jay does loads, he gets up and does his breakfast, he does all the walking and he comes home everyday for lunch to give me a little break and check I am ok. I take my hat off to those of you who are chronically sick and have children, I don’t know how you do it.

It has been a hard week health-wise, I just hope things start to settled down very soon.

Pure Joy

I try not to write an awful lot about Dembe on here mainly because he has his own blog The Dembe Diaries . However there will be times when I do write about him because he is such a huge part of my life. I really can’t believe how much I love the little guy as initially I was too scared to give him my heart completely. Talking to Mr Myasthenia Kid he said the same, he didn’t want to be hurt or feel the pain again in the future ( a very long time away we both hope obviously). The problem is this little guy is just so loving and so utterly devoted to the pair of us.

As the weather had turned warmer we decided that we would get Dembe a paddling pool. We had been looking at various different types but it was pretty clear we would need something that was going to withstand puppy claws. A child’s inflatable paddling pool would spend more time having punctures repaired than actually filled with water. I saw my best mate on Instagram had got her dog a rigid paddling pool which was exactly what we were after. I found out where she got it from and we bought one the next day. 

We had no clue how Dembe was going to react to a paddling pool. At the moment he will not walk through puddles on the common but if the shower is on he will dive in. He will chomp on the water coming from the hosepipe so his aversion to puddles is a real mystery. 

We needn’t have worried as he went absolutely crazy for it. The video was shot as it was being filled for the very first time. He stayed in the paddling pool ( jumping in and out) from 8.45am that morning until gone 2pm when he finally came back in the house and went to sleep for two hours. He had paddling pooled himself out!

Jay decided on Thursday whilst he was at work that Dembe needed some artificial turf placed around the paddling pool so he didn’t slip and slid on the patio slabs. He was running around like crazy on Thursday morning and we were worried due to his over excitement he was going to have an accident. At least with the artificial turf in place it would soften a fall and give him somewhere else to lie down outside when he wanted to chew a bone / frozen carrot.

 Since the garden has been revamped he has loved being able to go outside and play. He has also taken over one of the garden chairs and is using it as his sunbathing area.

I took the photo above yesterday. Green crocodile is one of his favourite toys, he loves soft toys and has loads of them. On Monday night he managed to drop well actually he threw Crocodile into the paddling pool. We had been expecting it as he likes to toss his toys up in the air and then chase them. I had to put crocodile in the wash and I had just given it back to him . I was in the kitchen and Jay was in the lounge, I looked outside and fell about laughing. He was sat there as proud as punch with crocodile hanging out of his mouth.

Dembe makes us laugh so much everyday. He has such an enormous personality. He is such a loving dog and also so very clever. Last week I taught him how to remove my socks and he now does this every night for me.

 

I did make the mistake on Thursday evening of asking Dembe to take my socks off whilst I was sat outside. He took them off and then proceeded to dump in the paddling pool. Lesson learnt, only get your socks taken off in the house!

Next week we will be starting his obedience training classes, I am excited and nervous at the same time. I know that he is reasonably easy to train so I can’t understand how Mr Myasthenia Kid can’t get him to walk to heel. I also want to get him to be able to walk alongside my mobility scooter and for me not to have to worry about running over his feet. I am also worried that the class will wipe me out as it is held in the evening and my ability to join in with a lot of it is going to be severely limited. However it is really important to get the lead work sorted, so my fears will have to be overcome.

Dembe brings us so much pure joy everyday, I am so glad we have him in our lives.

The Dentist… not an experience I wish to repeat

As regular readers will know last Friday I had the dentist for a tooth extraction. It wasn’t a very pleasant experience and for that reason I am stating now

if you are fearful of the dentist or have a dental phobia please skip this week’s blog post.

I would hate for anyone to read this and then never go to the dentist again. So I am warning you it wasn’t pretty but there were some humorous bits as well.

I had been pretty wound up about this trip to the dentist from the Tuesday of the week before. Granted I asked for the extraction as I couldn’t stand the thought of having to listen to the drill going and the fear that at any moment the local anaesthetic will have worn off and I will be able to feel everything. The night before the appointment I decided that I would take 5mg of diazepam to ensure I slept. Fear of any kind of medical appointments can leave me struggling to sleep for up to a week prior. Thankfully I had been able to sleep over the previous 9 nights, as we were sorting stuff out due to the car. I slept well but woke up with my usual Diazepam hangover I get when I take the full dose. Of late I have been cutting them in half as they work just as well when I am struggling to sleep.

My appointment was for 9.35am, as we now get up ridiculously early due to Dembe ( although saying that he slept until 6.10am this morning had his breakfast and then slept until 8am – unheard of and what a luxury!) it felt like it was hours away. At 8.45am I took 5mg of Diazepam, now I never take Diazepam during the day, maybe in the evening when my back is in spasm and I would never take the full dose of 5mg. I also took some oramorph so it was in my system and would hopefully help with the pain. By the time we were travelling to the Dentist surgery at 9.20am I was off my face! 

I actually felt like I had drunk several gin and tonics on an empty stomach. My face was numb and all I wanted to do was go to sleep. Jay dropped me off, I prefer doing the dentist alone as then I don’t have to pretend to be brave to an audience. He was going to take Dembe to the beach. I checked myself in and made my way to the waiting room. Eternally grateful it was on the ground floor as by now there was no way I was ever going to manage to do steps by this point. Putting one foot in front of the other without falling over was enough of a challenge. Thankfully the waiting room was empty and I wasn’t going to have to pretend I wasn’t off my face. It was like one of those situations where you are having pretend you are sober and the harder you try the drunker you look.

It was just as well the Diazepam had rendered me incapable of doing much at all because I was late going in for my appointment. around 30 minutes. At any other time where I hadn’t taken Diazepam I would have just run away claiming a prior engagement for not being able to hang around. By the time I got into the consulting room I was floating, I knew I was at the Dentist but I didn’t really give a shit, which is the complete opposite of how I normally am.

As I walked in the Dentist asked me how I was, I laughed and said ” I’m floating” he looked a little confused so I reminded him that he gad previously advised me to take Diazepam for any interventions he was going to carry out. He started laughing, normally I am so uptight I can barely speak. I wasn’t looking forward to the procedure but the overwhelming sense of fear and need to get the hell out of there had gone.

I reminded him – god knows how that I really didn’t need any detail during the procedure, just a high level overview at all times. It is the detail that makes my fear spiral out of control. 

Now my memory of events is a little hazy, I am having to look back at stuff I wrote on social media whilst still under the influence to remember exactly what happened. I know it was horrific and I am still in pain. My gum where the tooth was removed is black and blue and I have only been able to eat solid food from last night 4 days after the extraction. I do remember being rather amusing although it may have been only me that was amused.

Initially my Dentist had a look at my tooth again. I know that he said that it had disintegrated further from just over a week ago. I do have a terrible habit of unconsciously clenching my teeth when stressed and obviously over the last week with having to find a new car and this appointment looming I had probably been clenching more than normal. The tooth to give you a basic idea is on the right upper jaw at the back 7 I believe is its number. It was filled a very long time ago, due to EDS my teeth have narrow fissures which mean they are much more prone to needing filled. Had anyone realised I had EDS as a child they would have sealed all my adult teeth as they came through to prevent caries ( decayed areas). Instead now I am left with teeth that are rapidly losing their enamel and are more filling than tooth. Anyway I digress, the tooth being removed just to complicate things had also fractured. So I one side of the tooth stood the filling and on the other sat the really crappy tooth.

The dentist then gave me two injections one either side of the tooth. The one on the outside of the gum wasn’t too bad but the one on the inside of my gum near the roof of my mouth really stung. Whilst he was waiting for the local anaesthetic to take effect he then did a quick clean of my teeth. I had to stop him once as it was sore, on my bottom jaw at the front but I can see how much better they are looking for it. Of course on the side where he had done the injection he could do whatever he wanted as I could no longer feel anything. As he knew he would have a limited time in which to work as I tend to burn through local really quickly, as soon as I was numb he set to work.

This was really weird, the dentist moved the chair really high up, so I was face to face with him and I was sat bolt up right. I closed my eyes at this point as I find it really uncomfortable staring into someones face whilst they try to rip your tooth from the gum. I have no idea what kind of implement he was using, I am guessing some kind of pliers, as I could feel the end of them against my lower lip. As he was pulling away the pressure was immense. I felt like my cheekbone was going to shatter and my TM ( temporomandibular joint – the hinge joint of your jaw either side of your face in front of your ears) was going to dislocate. I put up with it for so long and then I grabbed his arm and explained that the TM joint was moving beyond a normal range of motion and felt like it was being pushed to the point of dislocation. Let alone the feeling of pressure in my cheek bone. He wasn’t impressed and said “you are going to feel some pressure” I responded that I understood that but I was very aware of the fact that it wasn’t going to take much more for the joint to pop. Reluctantly I agreed that he could continue. He started up again and it was really quite clear that this approach wasn’t going to work. My tooth was claiming squatters rights and a different approach was needed.

As my tooth was quite fragile due to the fracture in it he decided to put a band around it to try and maintain its integrity and to stop it fracturing into tiny pieces. It didn’t work as although all I could feel was pressure there was the sound of a tooth exploding and a wedge of tooth dropped into the back of my throat. I tapped his arm for him to allow me to sit up and then I spat out what had dropped into the back of my throat. It was a chunk of the filling and a piece of tooth. What shocked me though was the sheer amount of blood, the dental nurse had done a good job using the suction device as I hadn’t tasted or felt any blood at all. I had however missed the sink bit when spitting and the dentists pristine white unit and floor now resembled a bare knuckle boxing ring. I apologised profusely for making such a mess. I then grabbed another piece of tooth out of my mouth and loudly declared “the tooth fairy isn’t going to accept this shit is she?” to which both the dentist and the dental nurse laughed. Probably more at the fact the longer I was in the chair the more drunk I was sounding.

As the tooth had disintegrated in my mouth the dentist decided he was divide up the rest of the tooth and remove it piece by piece. This meant the use of the dreaded drill. I started shaking a lot and I had zero control over it. The dentist asked me if I was ok but as he had his hand in my moth at the time I could only make a weird sort of noise that was accepted as a yes. The smell was disgusting, a weird burning smell. I spent the whole time gripping the armrests praying that the local anaesthetic was going to hold. I knew that this deep into the tooth there was a high chance if it was to wear off it would be like a scene from Marathon Man.

More moves with the pliers and more blood. I was starting to swallow it now, which was making me feel sick and slowly the tooth  came out in pieces but it was only the tooth that was visible above the gum line. The roots themselves were refusing to budge. The shakes were getting worse, at about this point I was lying there thinking I wish I had just had the bloody crown done. I had innocently assumed that the tooth would pop out without issue and now 20 minutes in we were looking at playing a game of dig out the roots. My heart rate well that must have been close to the 200’s. I was shaking like I was plugged into the electric mains. My heart sank when he informed me he was going to have to dissect the root in my gum using the drill. Again the fear was that the local anaesthetic would have worn off and I was going to be in pain.

I have to say at this point my dentist was really good. Every time he went to use the drill before touching me he would blow cold air onto the area he was going to work on to check it was still numb before he started. It wasn’t until it was all over and I was sat up talking to him that I clocked that he had a syringe primed with extra local anaesthetic in case it had been needed. I finally felt that after all this time he was listening to me.

I tried really hard to get the shakes under control but there was nothing I could do. The taste of blood the smell of the roots of the tooth being  broken up into pieces. I heard him ask the nurse for the root forceps or something similar. I had to ask to sit up again as whilst the nurse had been getting the tool for him a whole load of blood and bits of root / tooth was sat on the back of my throat choking me. Again I was a little taken back at the amount of blood. I know it was mixed with saliva but the blood was really bright red and thick, so was probably 90% blood and 10% saliva. I really didn’t fancy my prospects of being able to get off the dentists chair without fainting.

By the time it was over I had been in the dentists chair for over 35 minutes. I still couldn’t stop shaking. The dentist showed me the root’s of the tooth he had removed it was over an inch long no wonder the fucking thing hadn’t wanted to come out. It had also been twisted around the other side the root. Still under the influence of Diazepam I said “that’s a fucking monster” I do try to limit my profanity when in polite company but it felt right in the moment. It also noticed there was blood all over the instrument tray and all over his gloves. It is a good job that I don’t faint at the sight of blood.

I have to say this was the most violent and traumatic tooth extraction I have ever gone through. At the end of the procedure the Dentist told me that at one point he thought he was going to have to send me to hospital as he didn’t think he was going to be able to get the roots out. I am not surprised because I think I went into shock during it and that was what was causing me to shake so violently. Plus the sight of all that blood, repeatedly.

At the time of talking to the dentist I was clamping down on the gauze they give you to apply pressure to the wound. After five minutes he checked that it had stopped bleeding which it had but he gave me a spare gauze to take home. Just as well because 10 minutes after being home my mouth was full of blood and I then had to sit for 40 minutes with the gauze clamped against the extraction site to stop the bleeding. When I finally removed it, it was soaked all the way through.

The pain really started to kick in a few hours after I had got back home and my face started to swell. It took every pain medication in the house taken at regular intervals to get the pain under control. My TMJ also flared up with pain so moving my jaw was incredibly painful. For the next few days I was washing my mouth out with salt water every 2 hours. I felt so sick for hours afterwards due to the amount of blood I had swallowed during the course of the surgery. Its not an experience I want to repeat and I think I maybe referred to hospital for the wisdom tooth to be extracted after that debacle.

Its now Wednesday and I am still in pain at the extraction site. The pain hasn’t got any worse and it is localised just at the site rather than what it was like on Friday where the whole right side of my face hurt. I think due to the EDS it is going to take longer to heal. If it hasn’t settled down by next Monday I will give the Dentist’s surgery a ring as it would have been well over a week since the tooth was removed. I have had a quick look inside my mouth and there is quite a bit of bruising so I imagine that is contributing to the pain.

The good news is that on the same day of the tooth extraction Jay picked up our new 2nd hand car. I didn’t get to go out in it until Saturday but it is lovely and very comfortable. Dembe has given it his seal of approval and covered it in long yellow hair!

***

About an hour after I finished writing this post my mouth really began to hurt. It was hurting all along my cheek bone, up into my eye and nothing was touching it. I waited until 11.50am to ring the dentist as I was wondering if it was psychosomatic but as the pain was increasing I knew it wasn’t. Finally the dentist surgery rang me at 14.30 after I had rung them again just before 2pm to find out why I hadn’t heard from them – the pain was increasing and I just wanted there to be an end in sight. They asked me to come straight down.

Even thought this was an emergency appointment I was seen straight away by a different dentist than my own. He confirmed that the blood clot had been lost from the extraction site and that bone and nerves were now exposed. He had to give it a good clean out with cold water and then picked out all the food debris that had got in it. He said it was showing no signs of infection but he took an x-ray and they will contact me if they find anything. 

The extraction site has now been packed with iodine gauze – which tastes grim but has reduced the pain I was in enormously. I have got to try to keep it in situ for the next few days. Then resume the hot salty water rinsing. 

I knew this morning when I woke up feeling exceptionally tired and rough that something wasn’t right but just couldn’t put my finger on it. So glad that I have been, the only time in my life I was happy to visit the dentist!

Adulting

Well it seems that the universe isn’t done with fraying my nerves. 24 hours after last week’s blog pots was published we found out that our car was in need of some expensive repairs. The repairs were going to cost more than the car was worth – just the cambelt change we had been advised would cost us £400 with the best case scenario. On top of that we needed to get the mid section of the exhaust repaired as Jay had gone over a stick or stone and that had removed the exhaust from its mountings. It is at times like this I really can’t abide this adulting shit. I wish sometimes that someone else would swoop in and fix it all but then that would mean I wasn’t an adult at all. At 45 I need to realise the days of someone swooping in have long gone.

Being nervous about my tooth extraction went out the window. Instead Jay and I had come to the realisation that as much as we loved the car we have that this was probably a slide into it becoming a money pit. With one of the hospital consultants I see an hours drive away we need a reliable car. Other than trips to the hospital we do very little mileage. But I can’t be sat at the side of the road waiting for the breakdown service. 

I did a quick search online – this has been how I have found the last two cars. I thought I had found something ideal a silver Peugeot 207 Estate. It looked in good nick, nothing on there was screaming out to me. So rang the garage and this is where its gets bizarre. This garage was advertising on several well known sites yet when the phone was answered it was answered with just a “hello” not a “Hello XXX garage”. Initially I thought I had dialled the wrong number, so I asked if I had rung the garage, to which there was a bit of a pause and the guy at the end of the phone said yes. I then proceeded to ask him if the car was still for sale and if it had a recent cambelt change, full service history. The answer I got was yes the car was still for sale but he didn’t know about the cambelt or where the paperwork for the car was. The bloke sounded strange but I put it down to maybe he just wasn’t the full shilling. I should have taken a breath and realised how dodgy this all sounded. I mean a garage who answer the phone without telling you the name of the business, a car for sale ( and they only had 4 advertised on all the sites) and he didn’t know where the paperwork was. However I was stressed, I wasn’t thinking straight and we needed a car. Jay was dispatched by Taxi to the garage.

Whilst Jay was on route something was nagging at me about the car – my brain had finally engaged. So I did a background check on the cars history. Its cost me 50p and I could look up 5 different cars should I want to. What I found out concerned me, the car had not been on the road since 2017 ( which would mean an 8 year old car in 2017 hadn’t been able to be sold). It had failed its 2017 MOT and the list of fails and advisories were shocking. Ok I admit I had to google what half of them meant but even I knew a sub-frame failure wasn’t good. I messaged Jay and told him to come back. He messaged me back saying they hadn’t been able to find the garage – another bizarre thing, as the guy on the phone had told me the full address was on the website. However Google Maps had never heard of this garage. Thirty quid lighter and very stressed Jay got home with a migraine. He had to sit outside in the cold for a while, whilst I got him some pain killers and anti-sickness medication. He really did look rough.

So back to the computer I went, our options were being dictated by what was nearby and what boot size the car was as I have a mobility scooter and a wheelchair that I need to be able to put in the back. Most cars other than estates and people carriers just don’t have that kind of space. Just when I was about to cry with frustration I discovered a small garage 12 miles away that had a Renault Grande Scenic for sale, this was the next model up from what we currently drive so we knew the boot space was going to be ideal. I showed Jay the photos and I then rang the garage. This time I was told the name of the place I was ringing, which was a good sign! I then had a chat about the car and asked if the cambelt had been changed. The guy said no but it would be changed before we bought it. 

I did another background check it was 22 days without an MOT and probably about the same for car tax. I looked through its MOT history it had passed it’s last MOT with no advisories ( for those of you in the USA etc who are unfamiliar with the UK system cars have to be checked every year by a garage after they are 3 years old. This is to check it is safe and its emissions are compliant with the law. Advisories are things the garage notes that tells you although it didn’t fail the MOT on those points they will need repairs before your next MOT.) It had failed MOT’s in the past but all the work needed to ensure it passed and all the advisories had also been addressed. 

The problem was we had been advised that our Cambelt could go at any moment and we were only using the car now for essential travel. Where we needed to go was out in farming country and was down tiny single track roads. Should the Cambelt go out there we would effectively be up a certain creek without a certain paddle. Thankfully my parents had text me to let me know that they were up at their caravan ( about 3 miles away from us) so I rang them and explained the problem. They came to the rescue with my dad taking us over to the garage to have a look at the car. We took Dembe with us and he was such a good boy, as he isn’t brilliant in the car as he can whine a bit but he barely made a sound.

As we pulled up the the garage I could see that the owner had pulled the car out onto the tiny forecourt for us. Believe me I have travelled an hour to see a car at a garage in the past and found it at the back of the lot hemmed in by other cars despite them knowing we wanted a test drive! So that was another tick in the box. We had a look at the car, it was perfect for us. The boot was enormous and technically it is a 7 seater as there are two folded down seats ( completely flat ) in the boot. The car is big enough to take Dembe’s crate and my mobility scooter un-assembled. My mobility scooter comes apart so it can fit in the boot of a car. 

As we were happy with the car the deposit was paid and now we play the waiting game. The car needs an MOT and whatever work needs done for it to pass, if it needs any. It will be having a full service, the cambelt changed and the rear drivers side passenger window fixed. It’s an electric window which isn’t working, not that we open the rear windows with Dembe in the back. 

I am now going stir crazy as although Jay is still using our current car to take Dembe up to the common for his walks, I am not going with him as if the car breaks down I can’t walk home. I don’t have the ability or strength to walk should that happen. So I am currently going stir crazy as I haven’t left the house since Friday afternoon. Normally I go out of the house in the car about 5 times a week. That drive out onto the common, even though I just sit in the car, keeps me sane. It gives me something different to look at. I am at the point now where I just can’t wait to get outside. Of course this week I had a load of appointments my hospital appointment was booked for tomorrow so that has been cancelled. I was supposed to be at physio today but again its been cancelled due to not wanting to drive the car that far. The only appointment that is still going ahead as planned is my dentist appointment Friday for my tooth extraction. If we don’t have our new ( 2nd hand car) here by then I will take a taxi. 

Whilst sorting out the replacement car I ignored the fact that I had a UTI brewing, which caused me loads of pain over the weekend and I am only just feeling back to normal now. Thankfully I already had antibiotics in the house so as soon as I realised it wasn’t just an irritated bladder I started taking them. So Saturday afternoon I ended up having to go to bed as I felt so ill.

So we are on the countdown now to getting the car, I just can’t wait to get outside and see something other than my home and the garden!

what’s a cambelt?