Happy New Year 2020

Welcome to the first post of 2020, doesn’t it just sound so weird 2020? I keep expecting someone to add in the word vision. This year will mark our 20th wedding  anniversary, it will also be 23 years that we have been together as a couple. How on earth did I get so old to be celebrating 20 years with someone. At 46 it now means that I have spent half my life with Jay and scarier still that 50 is looming ever closer! 

A New Year can make you sit and take stock, it brings about all the New Year New Me bullshit but for those of us facing some bereavement anniversaries the only thing we ever want to do is just get January over with. The first anniversary of Frankie and Mollie’s passing was far harder than I could have ever imagined. I spent both days in floods of tears pretending I was ok to Mr Myasthenia Kid so he didn’t worry about me whist attempting to deal with his own grief. The day after Mollies anniversary it was the 2nd anniversary of my Gran passing and this year it hit me harder than the first. 

There have been so many times over the last 12 months I have gone to ring her and got as far as picking up the phone only to suddenly realise she is no longer with us. I still haven’t deleted her number from our phones, it is the same with Andrews. Towards the end of this month marks three years since Andrew passed away and his number is still the first on both mine and Jays phone, along with the home phone. In the same week it is the second anniversary of losing Pam, one of my oldest friends I made in Exmouth and my next door neighbour twice. It would have been her birthday the week before. So as you can see January is an exceptionally shitty month for Jay and I. A month where we grit our teeth and try to just get through it.

Thankfully this year we have signed ourselves up for training courses for Dembe, so last night we had our first session of the advanced class. Dembe did really well and we got a bit of one to one time at the end with the trainer Martin as we are trying to get Dembe to walk, next to the mobility scooter with me holding the lead. I find this nerve wracking as I am always terrified that he will get too close and I will run him over. This bit of training is as much for me as it is Dembe. We do love going to training and Dembe enjoys it too. On Sunday we will be going to Agility Training for Non Beginners, this is a fun course which leads on from the agility course he did last year. He enjoyed it so much particularly the tunnels we decided we would do the next one on. It also gets us out of the house on Sunday and Dembe just loves going and doing something different. Our whole lives revolve around him, making him happy and providing a stimulating environment for him.

Thankfully we had a lovely Christmas despite knowing what the end of December and the whole of January would hold for us, with all those anniversaries. We received a truly wonderful gift from two of our friends, I burst into tears when I saw it ( I am blaming the menopause for ability to cry at the drop of a hat at the moment). It now has pride of place in our lounge and we have since added some more photos to the wall around it.

We were both so very touched by the thoughtfulness behind this gift. It contains a photo of ( going left to right) Willow, Mollie, Travis. Frankie and then Dembe at the bottom as a tiny pup. I can’t believe that this Saturday will mark the end of his first year with us, what is known as amongst dog people as his Gotcha Day. We will be celebrating his Happy Gotcha Day and we thank our lucky stars that we have such a wonderfully affectionate dog as Dembe.

Dembe was thoroughly spoilt by our friends this Christmas, it was crazy the amount of gifts he got and we are incredibly grateful to everyone who got him something. We certainly didn’t expect it.

Not in the photos, his Uncle Paul also got him a new food bowl, Sam gave him a tin of sardines which he had for breakfast Christmas morning, some tennis balls and a bone shaped chew, he also got bags of treats from various people as well. He was a very lucky little pup. We got him the huge tugger you can see in the photo, along with the grey puppy. We also got him a pop up tunnel which he went through twice on Christmas morning but has flat refused to do it again. We are hoping after Sundays agility class he will be happy to go through it again.

I planned to do as much of a #memadechristmas  as possible. At times it was incredibly stressful, wondering if I would manage to get it all done. I did and thankfully all my gifts were really well received. I also made the majority of Jay’s gifts, which was a bit of a nightmare as I am useless at keeping secrets and nearly gave the game away on so many occasions. Also I was using the day time to make presents for family and friends, whilst at night in bed when I was watching TV or couldn’t sleep I was crocheting him a hat and scarf set. I can’t remember if I have said anything on my blog about the fact I have been teaching myself to crochet since November 2nd. When Jay opened his hat and scarf from me, he didn’t initially believe that I had made it. The only way I could get him to believe me was to ask him to find the labels on them. He was thrilled with them both.

As he worked Christmas Eve I let him open one present from me, purely as I couldn’t wait to see his face. This was another gift that I had been working on in secret, a quilt made from a pre-printed panel ( so not cutting / patchwork ). He had seen this panel on several occasions when it had been featured on the now defunct Sewing Quarter tv channel, every time he had raved about it and what a lovely quilt it would make. I purchased it in secret and then when I could worked on it. He was over the moon with it.

Christmas was a bit of a Dembe and Daddy “love in” which was a gorgeous to see. Dembe loves it when his daddy is home and makes a real fuss of him. He is my dog but he loves his daddy very much as well. I managed to get this shot of them on Christmas morning

Dembe sat on Jays lap as often as he could during Jays time off form work. They really are devoted to each other.

I had some really lovely gifts from friends and family. I took part in a Secret Santa organised in a Facebook group I am part of and received a pattern – The Humbug Bag and some beautiful fabric ( and some zips).

From Jay I got a little travel iron – which I had asked for to help me when I need to iron small pieces of fabric or small seams on quilts. Ironing is a bit of a nightmare for me so anything that makes it easier for me is brilliant, I hate having to wait for help. I also got two books on crochet,

And I have already made a small dog from the book – a weimaraner, it looks dog like but not Weimaraner like but that is down to my skills at crochet that need a lot of practice.

I am currently working on a giant Labrador made out of chunky wool. It is HUGE! Dembe keeps barking at it as he wants to play with it. Currently it is limbless and ear less, although I have embroidered his nose on. Which is what is probably making him bark.

We got so many lovely presents we really are very lucky to have such lovely friends who spoil us alongside our families.

Even with all the gift making I managed to gift myself this Christmas Quilt which I made on my embroidery machine. I am very proud of it as it is the first quilt I have done on it and until October 2019 I had never done applique on my Embroidery machine as the thought terrified me.

I was very sad when my quilt had to be packed away along with all the other Christmas decorations but I am really looking forward to getting it out again later on this year. 

I hope that those of you who celebrate at this time of year had a wonderful time. Wishing you better health, happiness and peace for 2020.

 

To feel human again

It has been a manic few days and it has left me utterly exhausted. I have seen that many people I could almost be accused of being a social butterfly. All I know is today I feel like the batteries have been taken out and I am working with my emergency power supplies only.

We have started back at dog training and we are going twice a week. On Sundays Dembe has his agility training which he loves and is doing so well at. On Tuesdays he has his obedience training which he loves in a different way. Both tire him out mentally as well as physically. The problem with the dog training is that there is just one day in between which doesn’t quite give me enough time to bounce back if I am then adding in medical appointments or getting my hair done or seeing people. 

Tuesday was my final medical appointment out of a string of 4 over the last 3 weeks. One medical appointment in a week is enough to knock me for 6. 4 in the space of three weeks has sent me crashing. It’s hard to describe what you mean to people that aren’t sick. For me it means I wake up feeling more tired than when I went to bed. It is an effort at times to even take a breathe in. As the day wears on I feel like I have been at the gin, without the fun part, so my eyes are bouncing around all over the place and I feel disconnected from my body. I look very pale and run down but inside I feel like death warmed up. I can struggle to maintain my body temperature so that I am freezing cold ( even in the height of summer). I can get emotional over the slightest thing, lose my temper usually with inanimate objects that aren’t doing as they are told because my hands won’t work ( so I am continually dropping them ) . It makes it hard for me to complete anything that requires attention to detail.

Add in me making the stupid decision to make all the Christmas gifts for family & friends but not starting the majority of them until a few weeks ago and I feel like I am on a hamster wheel that I just cant get off. There is no down time as not doing something for a day puts me further behind but this week I have had to take a step back because I am so tired I can’t work without making mistakes. Doing nothing makes me feel like a failure and that I don’t contribute anything to the world…which is why I have been teaching myself how to crochet so that on the days I can’t sit at the sewing machine / embroidery machine I can do something else curled up on the sofa or in bed.

The stupid thing is I keep adding to this list of things to make which is then piling on the stress. I will get there but I keep having panic attacks when I see someone helpfully posting on Facebook that there are X amount of days / weeks until Christmas. I really need to learn to be kinder to myself as even on the days when I have felt drained I have still pushed myself to do just a little something. I like to break tasks down so that I when I come to make an item it is all ready to go and the amount of time it will take to get it all together will be massively reduced. 

So like yesterday I decided to have a go at making the Doggie Christmas Stocking from Sweetpea Embroidery. Because I know I need to make at least two of these for gifts, as I prepped the fabric pieces for the first stocking I did the second. It took me longer, obviously but Jay was home and was doing all the running around for me so all I had to do was sew. When or if I manage to get to the embroidery machine today all I will need to do is stitch it out as everything is ready and cut to size. This is how I have to do all my projects, I do all the prepping one day or over a couple of days and then when I make the item I can concentrate solely on that rather than expend energy I don’t have. It is very rare for me to be able to start and finish a project no matter how small in a day. As my actual time I am able to work is so severely limited. I can’t sit at the embroidery machine or sewing machine all day, I am deeply envious of those who can. I am in pain within 20 minutes, so have to take regular breaks. I have an alarm on my phone that goes off every 20 minutes to ensure that I get up and move / change positions. Otherwise it will cost me £45 at the physiotherapist whilst she tortures me ( in the nicest possible way ) to correct the damage I have done to myself. 

It’s the same for material prepping. Everything is done in stages. Many times I make cardboard templates to help me with ensuring I cut out the right size fabric pieces. This helps with cutting down waste and ensures that even if I am not thinking straight as long as I have the right template ( sometimes that isn’t as easy as it sounds) I can be trusted to cut my fabric out. Obviously making templates adds more time to a project, it tends to only happen if I know I will be making more than one of an item. Basically the majority of my life is spent breaking down tasks into smaller manageable chunks so that I have the energy to be creative and give my life some meaning.

Currently there are boxes everywhere with bits of fabric / templates / batting all cut to the correct sizes waiting to be embroidered and sewn together. It will all get done but it will be done slowly and in the best way that I can pace myself.

I am so exhausted today as Sunday I had two visits from friends who had come to collect their table runners that I had made them, one in the morning, one in the afternoon. It was great to see them but we also had dog training in the middle of the day.

The table runners had taken a lot out of me getting made and I had been stressed out about getting them straight and sewn together nicely. I took a lot of time over it. The top stitching alone left me needing a nap afterwards last Friday. I sewed the rest of it together on Saturday afternoon.

Monday I had my hair done for the first time since August, it needed done desperately as I had already used my dressmaking shears to hack a sizeable amount off the fringe ( bangs ). After my attempt at hairdressing it was even more important that it was sorted out. I am lucky that I have a wonderful friend who does my hair for me and knows I find the whole process exhausting. Doing it at home means it takes 2.5 hours instead of 4 hours being overstimulated by lights and sound in a hair salon. 4 hours in a salon would probably lead me to be bed bound for around a day.

Tuesday – the last medical appointment was for my filling. I did it without diazepam the first appointment in ages where I have managed that. My dentist and I have now got a process that works and reduces my anxiety. I had to ask him just to not tell me any detail about the procedure. I only need to know that I require a filling not what he will be doing. It worked brilliantly as he didnt tell me on the 4th of November what the process would be and yesterday as he did it he kept quiet . It worked like a charm. I was just left with TMJ pain in the afternoon and evening, which triggered a migraine. I spent a lot of the dog training session last night losing the vision in my right eye and the feeling that my scalp was shrinking.

Today ( Wednesday ) I have woken up with the remains of a migraine, waves of nausea and just generally feeling washed out and knackered. I will push myself later to get something on the Christmas present to do list made or completed but for the minute I am drinking bucket loads of coffee in the hope it will make me feel more human again.

Recovery is dragging

I wrote last week about the consequences of going out and I clearly didn’t have a clue how bad things would be as I am still suffering after my day trip. I think maybe it is just rotten timing that ever since I have been feeling very tired and run down. This last Monday I ended up with a hideous migraine that knocked me flat on my back for over 12 hours and had Mr Myasthenia Kid have to come home from work to look after me. I am glad I am out the other side of that but it has shocked me how battered and bruised I am still feeling for having a few hours out of the house.

I am guessing having a solid six hour block of socialising, driving a scooter and having to use a lot of brain / muscle power probably wasn’t the best idea. The longest I am normally out for is probably 90 minutes at an absolute push and that will leave me more exhausted for normal for up to two days after. My days when I don’t leave the house are in cycles of rest and activity. I have to pace myself or I end up paying for it. It hasn’t helped that there have been appointments that I have been unable to not attend – ringing up and explaining to the receptionist that you need to re-book because you are shattered never goes down well. There isn’t really a word in the English language that accurately conveys the level of exhaustion because we overuse words like fatigue, shattered, tired etc. For me it gets to the point where I can feel like I am having an out if body experience or that I am dreadfully hungover combined with feeling so utterly exhausted it can be really hard to motivate myself to move. 

I have been on my embroidery machine and sewing machine a lot as I am making Christmas gifts for friends and family. I know it is only October but I get panicky if things aren’t made and then I start to feel stressed which means I no longer enjoy making the items. At the moment I have been limited to an hour or two a day, which doesn’t help me get loads done but it is the longest I can sit without the pain becoming so intense that I have to lie down the rest of the day or concentrate for. Obviously on the embroidery machine when it is stitching out I don’t have to concentrate on anything but I do need to be switched on enough to know what step comes next as for the first time I have been using the embroidery machine to do applique and I am really enjoying it.

I know I should have taken it easier last week but even after 12 years I think I can push it and there will be no consequences. I never ever learn. Maybe I simply refuse to.

This week my body has just thrown a hissy fit and ensured that I can’t carry on ignoring it when it sends out distress signals. Every bloody condition I have is flaring out of nowhere – Hidradenitis Suppurativa two abscesses after at least a month to 6 weeks without anything, Arthritis hands as stiff as can be, Nerve Pain left leg is burning which it hasn’t done in years, Tinnitus (so loud I am struggling to hear anything else) Migraine and now a headache every day since, nausea, IBS, adhesion pain, Muscle Spasms in my back and feet you can always guarantee will make me swear like a sailor literally everything is kicking off at the moment. I always find pain adds considerably to the fatigue. 

This isn’t a woe is me post or an attempt for sympathy, I am just explaining how things are at the moment and why at the moment I am struggling to come up with dynamic or scintillating posts. I am finding it hard enough to follow a conversation let alone put an intelligent blog post into words.

I do count my blessings though, Dembe is my hero. On Monday when I was so sick with my migraine he wouldn’t leave my side at all. I thank my lucky stars I have him as even on the days when I am really suffering and thank goodness they are few and far between he is stuck to me like glue and always makes me smile.

So I promise to attempt to be kinder to myself over the next week and get back on an even keel.

Consequences

I went out on Sunday with friends…. I know that sentence seems bizarre. It is something I haven’t done in 12 years. On the surface it may appear to some that to attempt such a thing must mean that I am doing better. I mean I left the house and socialised for 6 hours. What they didn’t see was the fact there were days of pacing so activity followed by rest periods. Massive amounts of ensuring I got my medications scheduled at the right time and attempting not to let my anxiety take over.

We planned going to the create and craft show back in July. As the ticket only cost £8, I was prepared to lose it if on the day I woke up and wasn’t well enough to attend. It seemed so far off in the future the 29th September that it may as well been a year away. So when I realised it was the coming weekend it set me into a panic. My biggest fear was becoming ill away from home and then ruining the day for my friends.

The anxiety leading up to this event was off the chart. I lost a few nights sleep over it. I kept catastrophizing, what if’s? The stupid thing is many of these what if’s have never happened. It was a fear of the unknown, of never having been to a Create and Craft show or knowing how busy it would be.  Surprisingly the morning of the show the anxiety had subsided and I was able to look ahead to the day. I was almost relaxed which then made me anxious.

I had more medication on me than a pharmacy to cover me for every eventuality.  I had my 4 hourly meds – pyridostigmine and pseudoephedrine to ensure that my blood pressure remained high enough for me to remain vertical and not suffer horrendous fatigue. Extra pain relief in case sitting on my scooter for all that time caused muscle spasms or just pain. Stugeron in case my vertigo decided to kick off and cause me problems. Taken at the earliest opportunity it can stop an attack in its tracks. Buscopan, in case due to nerves my bowel adhesion pain decided to pop up and make itself known. Paracetamol – to give me extra back up for my pain relief. I decanted oramorph ( liquid morphine) into a smaller bottle so I didn’t have to carry a huge one with me. Alarms were set on my phone, compression socks on, allergy lists, medication lists and medical condition lists were safely stowed in my bag. Along with a list of my doctors and next of kin. All this and I was only leaving the house for a few hours. If that all sounds like someone who is doing better let me know.

Every trick in my book was employed to ensure that I would be able to cope with this trip out ( as a one off ). Everything that could be done in advance of Sunday was done. Clothes for the day sorted by Wednesday, down to underwear and compression stockings. All clothes had to be comfortable, in layers so that I could be warm or cooler depending on how my temperature decided to behave on the day. Normally I am always cold. All medicines, allergy lists, medical info was printed out weeks in advance and kept in an envelope so on the day ( or day before ) it could just be slipped into my bag. My bag was packed on Friday and Saturday, last minute items Chilly bottles of drinks were added on Sunday morning. Nothing was left to chance. Every eventuality was planned for. Jay would be staying at home with Dembe and would be ready to come and get me should I need collecting early.

The day itself was fantastic, I managed to chat to lots of people. I met the ladies behind the scrap-busting quilt challenge from Sugar Bowl Crafts and bought half a metre of material from then, some Anna Maria Horner fabric. I chatted at length to the local branch of the Embroidery Guild and would have signed up to attend meetings had they not taken place on a Saturday. Not driving and having hubby work in retail meaning Saturdays off are like gold dust means I miss out on a lot of things. I also spent a great deal of time talking to the Quilters Guild  region 4 which is my region. I am now considering entering a quilt into the novice category of The Festival of Quilts as 2020 is the last year I would be able to enter this category. You have to have been sewing less than 3 years, I started October 7th 2017.

I could have spent an absolute fortune on fabric. There were just so many beautiful fabrics from so many different designers. I managed to pick myself up some bargains. I got some gorgeous fat quarters, some Christmas and some non Christmas.

 

I managed to pick up some good quality thread for £1 a reel. The pinky one is for me to finish a cushion cover as I didn’t have any threads that were even close to the colour of the fabric. The blue thread is for my Christmas table runners. As I tried applique on my embroidery machine last week for the first time, I absolutely loved it.

Yesterday I found out my snowmen are going to be the Brother Embroidery machine group that I belong to banner for the month. Which was a wonderful surprise.

A lot of my Christmas fabric was bought to make Snowmen and Father Christmas table runners as gifts. So I went in with a set list and didn’t deviate from my plan. It would have been incredibly easy to go mad but I have so much fabric that I need to only buy what I need, not what I want! Or I will have to make another scrap-busting quilt very soon!

By the time we had finished at the show I was getting cold and exhausted. I was in bed by 6.15pm as I could no longer hold myself upright and had already suffered a bad fall in the kitchen about a hour earlier caused by being over tired. I was asleep before 8pm and slept all the way through waking at around 6.30am. By 7am I had badly scalded myself with steam from the kettle so Monday was effectively written off as I spent the day on the sofa with my hand in a bowl of cold water.

Yesterday was pretty quiet too although I did manage to stitch out a cushion front for a friend. Only because hubby was home and I didn’t have to do anything other than look after myself. I managed to forget to take my blood pressure boosting medications so by 4pm I was wondering if I would make it to dog training. I took my medication and had two cups of coffee and that saw me through. However this morning…Wednesday all the activity has caught up with me and I feel hungover, the concentration span of a gnat and every part of my body hurts.

I knew that I wouldn’t get away with going out unscathed, I am a little surprised that it has taken over 48 hours to hit me properly. Normally it is 24 hours before I feel an outings / events full effects. But this was a huge deal and I had probably kept myself going with the adrenaline still firing and the fact Monday I couldn’t do anything and I was still limited yesterday. There are always consequences, I will always end up paying for enjoying myself. I can’t complain it is far worse not to have done anything and still wake up feeling like you have been run over by a truck. I might not look that sick but looks are very deceiving. Only people who really know me, know how I look when I am taking a nosedive. This morning I only had to catch sight of myself in the mirror to know that this was the day I would be paying for trying to be normal.

So it was a huge deal for me going out on Sunday, it wont be a regular thing as I don’t want to spend days recovering no matter how much I enjoy myself. This is now recovery day three and this is the most multisystemic one. Today my blood pressure is misbehaving, I am white as a sheet and my pain is at a higher level than the norm. I would love nothing more than to announce that my health has made such a significant improval that a trip out with friends had no consequences for me but sadly that just isn’t the case.

Massive thank you to Alison and Tracey for looking after me. Also Chris for driving us.

Drained

Well the clock has run down and I still have no clue what to write this blog post about. Last week I was full of energy but this week I feel like the batteries have been removed and I have been left discarded in the middle of the playroom. I have had two very restless nights on the bounce, a physio session yesterday and I am drained. It isn’t very often I feel this fatigued but I am even struggling to ignore the siren call of my bed presently.

I am wondering if it is a combination of being back on antibiotics again, courtesy of a HS flare up. A mild virus, I have a bit of a cough / sore throat but it really isn’t anything major, more of a mildly irritating tickle but feels like it did in the bad old days when it would go into Bronchitis. Of course being two years smoke free ( I gave up smoking on 6th August 2017 and haven’t touched them since) I had hoped I might avoid a chest infection, especially as I am now taking zinc daily. With the change of the season, the air is getting fresher so my joints have thrown a hissy fit. Every day this week I have spent sat on my heated throw attempting to combat my joint pain with heat rather pain medication. My fingers are really bloody painful (including my thumbs), costochondritis has flared up, my right hip is painful, piriformis syndrome is rearing its ugly head and I keep getting a spasm in the right-hand-side of my back. I feel like I should really just dip myself in a vat of Ultrasound gel and have done with it. Every night I am spending around an hour giving myself an ultrasound treatment on various parts of my body. That in itself is draining but lowering the pain levels. This probably sounds like a huge moan. It isn’t I am just stating the facts. I put on a good show but I am exhausted by it all.

It is deeply frustrating when my only desire is to be creative and I can’t motivate myself to do it or the pain won’t let me sit at my machines for longer than a few moments. I did manage to get a couple of bits done last week. For the first time I made patches out of my embroidery work and attached them to make up bags. I found the pattern on line but adapted it due to increasing the size by 10% and adding zip tabs to give it a better finish. 

I made these two for friends who are both going through an awful time. It is also part of me paying forward after receiving a massive parcel of fabric from a lovely lady called Beverley on Instagram. She has been supportive of my sewing and embroidery from day one – she sells stuff online and her work is amazing. She always is full of praise for my work, which makes me blush as I am so hyper critical. Both bags were made from the fabric she sent me, as will a couple more, that will be Christmas and birthday presents. 

I am itching to get started on working on these items but everything feels like lead. Maybe later on I will start to feel a bit better and I will be able to do some embroidery. I make the patches first, deciding on a design for each person, before then deciding on the fabric within my expanding stash that goes with it best. For the Lurcher bag I chose the blue leaf fabric because it went so nicely with the scarf on the dog. With the fox bag I chose the white and green as I felt it looked like sunlight through leaves and you were peering through the undergrowth and came across the fox. Sounds a bit whimsical but that is exactly how I work and I make no apologies for that. That’s why I get so fed up when I feel so drained that I just can’t work on a project. I know there is plenty of time but there are just so many things I want to do.

When I can’t sew or embroider I spend a lot of my time looking at projects for the future. My whole life revolves around sewing / quilting / embroidery and I love it. I have never felt so creatively fulfilled.  Which is why it is so frustrating when I can’t actively do stuff. I am lucky that I can do it, so I really don’t want this to sound like I am moaning. Although thinking about it I am fully entitled to. I can’t see many of my “well” friends coping with the amount of shit I have had thrown at me over the last 12 years. I have had several of them tell me they couldn’t live like I do and that they would rather top themselves. I think, they believe that is a compliment but all I hear is that they believe the quality of life I have is shit and nothing could be further from the truth. As others have said long before me, “life is what you make it”. You carve out tiny pieces that fulfil you whenever and wherever you can.

I have noticed after the last two Physiotherapy sessions that it is taking me longer to recoup the energy expended by attending. So that on top of everything else is probably what has caused me to be knocked on my arse. I know this state if fatigue is more than likely temporary and I just have to ride it out. I am currently just drained.

Scrap-busting sew along complete

As Jay is on holiday this week and we have stuff planned for everyday this will just be a quick one.

A while ago I wrote a blog post  Scrapbusting   in which I told you about a sewing challenge that I had joined. This was what is known as a sew along and the challenge was to make a quilt out of scrap fabric. I had never joined a sew along before as I never believed that I was good enough to take part. This challenge has totally changed my mind and I am so glad that I took the plunge.

I finished my quilt on Friday afternoon, at some points it felt like it would never be finished. The quilting was exhausting, as I had chosen to do a hexagonal design , which meant getting a very large quilt through a domestic machine on multiple occasions. Also getting the quilt sandwich together was a monumental task. The lounge had to be cleared of furniture so I had the room to lie the quilt flat on the floor. A quilt sandwich for the uninitiated is quilt top + batting / wadding + quilt back. All the layers have to be smooth so that when you are quilting it, you don’t end up with lots of puckers. Of course I had my very own helper.

When I say helper I mean that in the loosest possible way. 

It took me around several days to complete the quilting. I had to take a week off after I started as I had my second corneal abrasion ( it was the second in 4 weeks this time I managed to scratch in a line above the pupil and I am fighting to get a referral to ophthalmology but that sorry tale is for another day).  The abrasion healed quickly but my eye was full of gunky ointment as it was so dry.

Whilst quilting I did wonder what on earth had possessed me to do such a complicated design but I was throwing caution to the wind and trying out new things. I managed to get the binding on in a day because I machine bind. I find using a needle and thread quite difficult so it is the only way for me to finish a quilt. The quilt police will be having a field day but I really don’t care. I have to do what suits me and what allows me to complete a quilt, not what the quilt police want.

It is the largest quilt I have worked on coming in at 54 inches by 77 inches. I am very happy I have finished it as I was starting to get a bit bored as I was itching to start new projects.

I made my quilt label on my embroidery machine. I managed to get it sewn on yesterday but it was slow painful going. I really need some new hand sewing needles as I only have inbetweens which are tiny and a nightmare for me to work with my fingers decide to be uncooperative.

We are using the throw over the back of the large sofa as it fits it beautifully. Plus it won’t be subjected to Dembe’s nails there as the one on the small sofa is constant attack as he had decided the lounge window sill is now his. 

 

 

Mish mash

I will admit I am pretty tired and have lost my mojo with the blog this week so I thought rather than post nothing at all, it will be a bit of a mish mash of lots of different things!

I had my physiotherapy treatment today, which consisted of deep tissue massage and ultrasound treatment. I am feeling very sore, nauseous and headache. Which is what always happens when my neck has been messed around with. I will feel better tomorrow but for now I feel like I have been through the 1600rpm spin cycle of my washing machine! The good news is that the pins and needles I have had in my left arm/ hand and shoulder has already improved significantly from this session earlier on today. I am booked in again for a treatment in September as my physio is away in August. Lucky for some. She is a miracle worker and I enjoy my sessions with her as we have long chats sometimes very in depth and emotional and sometimes fluffy. But it’s a good laugh even though the pain of being prodded makes me levitate above the bed sometimes. 

My neck muscles have become very tight again which is obviously the complete opposite of what EDS is supposed to do but we believe it is my bodies way of trying to keep my neck and head safe due to the lax muscles, ligaments and tendons. I hold all my tension in my neck and all my headaches come from my neck. It is a situation that has got worse over the last few years. At the moment I am resisting wearing a collar full time as whatever strength I do have in my neck will disappear completely. I am also aware that nothing touches the pain of a neck induced headache, well that isn’t strictly true as diazepam is the only thing that helps. But quite rightly the doctors don’t like prescribing that and I really can’t be bothered at the moment to go and beg. 

The other reason I won’t wear a collar full time is vanity, plain and simple. It makes my face look fat and it doesn’t need to look any fatter than it already is.

I promised a mish mash so here it is. Ages ago I wrote about my hirsutism, it initially started when I was put on steroids in 2008. I have always had a blonde moustache over my top lip but the steroids made the blonde hair thicker and much more noticeable to me.  I also grew more peach fuzz on the side of my face. Age and possibly being at the start of the menopause has given me a lovely crop of black hairs on my chin that like to go unnoticed until they are 2ft long or I have had the dentist / doctor / hairdresser / friends over. They only stop playing hide and seek about an hour after you’ve been at the dentist / doctor / hairdresser or had company. Despite the fact that you checked your known outcrop spots religiously using both natural daylight and the torch function of your mobile phone.

Over the years I have tried a variety of hair removal tools and they have all been crap. Hair removal cream results last for about 12 -24 hours until you can start feeling the regrowth. Plus I became allergic to them so whilst I would have a hair free top lip I would end up with a red raw line above my lip. I even ended up with chemical burns on one occasion so after that I haven’t used hair removal cream again. I have tried plucking but that is ridiculously time consuming. You also need very good eyesight and light to get a reasonable result. I then tried using Jay’s ear hair trimmer as it had a variety of different cutting heads. The problem was the hair would be back within a few days and feeling prickly because of the blunt ends caused by the cutting blades.

So a while ago I looked into waxing, I have no idea what prompted it. I use an epilator for my legs, so it probably came from that. I looked around on Amazon and came across the wax warmers, wax beans and all the bits you need to give yourself a wax treatment. I ordered all the kit and last week I started trying it out. I have found it remarkably easy and I don’t need really good eyesight to produce good results. I won’t lie the first time I did my top lip it made my eyes water but I was amazed at how much it took off. I bought some wax for sensitive skin and without colouring. As the wax was pale I could see all the hairs trapped in it, so despite my eyes watering I was pleased. 

After my first go it was clear I needed to work on my technique, so I watched several videos on YouTube. That has been a massive help, as with the wax beans you don’t use cotton / paper strips to stick to the wax, the wax sets firm enough that you just pull the wax strip off.  The real skill is creating a lip at the bottom of your wax strip so it make it easy to remove. I haven’t quite mastered that yet but I am getting there. I had another go before physiotherapy – that’s another occasion these hairs like to come out of their hiding places, this attempt went better. I think it is going to be one of those things that the more you practice the better your technique gets. The results have been really good and lasting much longer than any other hair removal technique I have tried.

Going off on another tangent, like I do. I have been managing to get out and about up on the common accompanying Jay and Dembe using my mobility scooter. With the weather being so dry the ground is nice and compacted making it must easier for the scooter to cope with being off road. Dembe gets really excited when I come out with them both for a walk. I have been managing to get out a couple of times a week.

 

Dembe is 8 and a half months old now and loves his walks. Although he doesn’t go as mental as the Weimaraners did. 

I  am still working on my quilt, I managed to square off all the blocks at the weekend and they are sat waiting to be sewn together. On Sunday I was on a local facebook group where people offer things to give away for nothing, in return the people that have stuff off the page must make food / toiletry donations to help those families in need locally. I spied some curtains that had been posted on the page before but no one had shown any interest. At the time I was drawn to the birds on the material. I thought I would be able to upcycle the fabric into bags or something. However when I got them home I realised how much I liked them and wanted to use them as lounge curtains. I had been looking to replace the curtains in the lounge for years but I had just never seen any curtains that I liked. 

The curtains needed some TLC, I don’t think they had seen the inside of a washing machine for many a year. They also had some holes in them where the fabric had become weak from being exposed to strong sunlight. What should have been a simple job turned into an all day event. I repaired the curtains in the space of an hour but found that they were too short for my window. So I ripped open the bottom seam as I could feel there was extra material contained in the seams. I only needed 4 inches at a pinch 3 would do. As luck would have it one curtain contained 17 inches and the other 15 inches. The lining had also been folded up. I was worried as these curtains were very old that the fabric that had been tucked away in the seam maybe brighter than the fabric that had been exposed to the sunlight but there was no discernible difference between them. I altered the curtains and the lining and now have a wonderful set of curtains for the lounge.

The fabric design is called Spice Island and was produced from the 1960’s until the 1980’s. It was sold in the UK department store called John Lewis and the designers name was Pat Albeck. You can find out more about her here – https://www.theguardian.com/artanddesign/2017/sep/15/pat-albeck-obituary

Quite spookily she was Emma Bridgewater’s mother in law. For those of you who follow my blog you will know that I collect Emma Bridgewater pottery. So it seems apt that I have the Spice Island designed curtains in the same room as the majority of my pottery collection.

I am so pleased with the job I have done on the curtains as I have never done them before due to the worry about having to be 100% accurate – not something I am brilliant at when it comes to straight lines. Mr Myasthenia Kid loves the curtains to, it was his idea that we have them ourselves instead of me cutting them up and using them to make bags.

Anyway like I said this week is an utter mish mash of stuff. I hope you have enjoyed the many tangents I have gone off on! 

See you next week.