Good god I feel old, as of last Thursday night, I started HRT ( Hormone replacement therapy). I was put on it for a number of reasons but the main one was an attempt to get a handle on my migraines that have just spiralled out of control since March this year. Leaving me some weeks having 3 a week. I was feeling permanently exhausted by it all, some of it was the migraine hangover and the rest was the Sumatriptan that although stops the migraine in its tracks leaves me feeling drowsy for the next 24 hours.

I’m not the youngest person to be put on HRT, I know people who have been placed on it since their 30’s due to premature menopause or surgical menopause ( post hysterectomy ) but I am a good 5 years below the national average of the onset of menopause which is 51 in the UK. So whilst I am 46 and amongst the first in my friendship groups to be placed on it, it is making me having to deal with the fact that the first flush of youth is well and truly over. Middle age is upon me and it is making me feel sad. 

The sadness has nothing to do with my fertility being over, that isn’t something that has bothered me. Although I can understand why some women would be upset by this especially those who have entered menopause early before they had the opportunity to have children. I am lucky I don’t feel robbed by it, just relief as my periods were just so painful they would dominate 14 days out of the month. I would get cramps up to 7 days before my period began along with tremendous amounts of water retention, I would have period pain for the whole time I bled and it would be at the same intense level throughout. The pains when I had them were so strong I could time the contractions of my womb ( one of the many reasons why I don’t have children as if periods hurt that much the pain of having a child would kill me, no word of exaggeration). Having periods made me feel like a prisoner in my own body. I had asked repeated doctors to let me have a hysterectomy, all they would ever say was no because I hadn’t had children yet. The best thing that ever happened to me was being put on the contraceptive pill cerazette which stopped my periods completely. I was no longer dictated to by my monthly cycle.

Since 2016 I have endured ever increasing peri-menopausal / menopausal symptoms. I started sweating really heavily at the slightest physical exertion after not really being a sweaty person. I noticed my natural body odour change as well and became paranoid that I smelled, despite Mr Myasthenia Kid and countless friends telling me it wasn’t the case. Then out of no where I was hit with crippling anxiety. I have always been an anxious person but this was off the charts, like nothing I could fully explain. I felt like there was a tight ball of barbed wire in my chest and I carried it with me everywhere. I had a constant feeling of my heart skipping a beat in fear. Due to the level of bereavements we went through in a short period of time I put the ever increasing anxiety levels down to a response to the grief. My life felt like it was spiralling out of control. It wasn’t uncommon for me to wake up at 1-2am in a full blown panic attack with absolutely no idea what I was panicking about. 

I would find myself in a cycle of  very unhealthy catastrophising thought patterns. I never looked for the silver lining only the absolute worse case scenario. I spent the first year of Dembe’s life worrying constantly that he would die. There was no indication that this was going to happen, it was just a constant thought in my mind. I worried about him constantly. The worst thing was I couldn’t share my fear because I was concerned that people would think I was deliberately trying to harm him or that I was just plain weird. It was a very lonely place to be and I feel like I missed out so much of that first year due to this irrational fear. I put my fear down to Travis, our first dog becoming sick at 6 months old and passing away just before his 3rd birthday. I also reasoned out losing Frankie and Mollie in quick succession had just made me hyper-vigilant and that it would pass. I would find myself waking up in the middle of the night just to check he was still breathing.

Carrying that level of anxiety day in, day out is exhausting. Especially when it is yours alone to bear.  That is why I can’t get over the fact that with just a few doses of HRT (4 so far, I am writing this on Monday morning) that ball of barbed wire in my chest has gone. I have lost that feeling of everything being out of my control. My anxiety hasn’t gone completely, I think I will always have some level of anxiety as that is who I am . I would be anxious if I didn’t have anxiety! I am feeling much more relaxed and even Mr Myasthenia Kid has said there is a glow about me, something he hasn’t seen for a very long time. He said the look of worry has gone from my face and I am back to being like the old me.

HRT hasn’t been without side effects, had I known that one of them would be rampant diarrhoea – and I mean the time when it sounds like you have taken a piss out of your ass ( sorry if that is TMI but really I have been writing this blog for 12 years if you are only just offended where have you been?)I would not have started it on Thursday night when I was going to be travelling with Jay and Dembe to look at cars, with at least two 90 minute journeys. Thankfully I woke up at 5am so I could take many doses of imodium ( 8 tablets I ended up taking that day) to stop everything I had eaten form 1973 on-wards pouring out of me. Thankfully after the first day this side effect stopped. I had reached out on social media and asked if anyone else had suffered this side effect and a few people had. I also googled it and found that I wasn’t alone with this symptom. Thankfully it did settle down after Friday and I have been fine since.

After the first dose I immediately felt different – well the next morning. Normally Fridays trip out to buy a car would have had me awake all night and feeling anxious and I felt none of those things. I felt reasonably relaxed and happy. Again another feeling I hadn’t felt in a while, happiness. Whilst I hadn’t been depressed, it was more like a feeling of being low / blue every day, I just felt more in the moment instead of caught up in my head . I even found myself singing which is something I haven’t done a lot of for many years. For a couple of years I have felt like an imposter going through the motions of my life, now I feel like it is me. I am not having to pretend I am happy or that inside that I am not a simmering pot of anxiety and rage. Rage has been another symptom I have suffered from. I could and would just explode over the smallest of things.

I am still crying at the drop of a hat which winds me up no end. I only have to watch a slightly sentimental advert and the tears are rolling down my face. I have got into the Canadian series Heartland ( about a horse whisperer, her family and a horse ranch). I watch it most nights before i go to sleep as it is on Netflix and there are 13 seasons. I haven’t watched an episode yet without crying at something. I seem to be lasting longer before the tears start, I am hoping that as my body gets used to the HRT * which could take up to 12 weeks, these tears will stop.

I am yet to know if the HRT will make any difference to my migraines, I woke up with one on Friday for the first time in ages. Normally I have been having them start in the afternoon with a classic aura. It could take up to 12 weeks for it to reduce  / stop my migraines. It could also not do anything at all, which means I may have to try different types of HRT to find the optimal one. I really am keeping everything crossed that at the very least my migraines are reduced if not stopped as the last 5 months have been very tough with so many days lost to them.

The hot flushes I was having have also reduced in severity since starting HRT 4 days ago. My hot flushes tend to go in cycles, sometimes they are awful every 20 minutes all day every day to the point my clothes are soaked through and I have to go and change. Filled with the paranoia that I am stinking of B.O due to the level of sweating. It got to the point this summer that I gave up drying my hair. There was just no point as the heat from the hairdryer and straightening irons would have me sweat so profusely that I would have to wait an hour to cool down before I could get dressed. I couldn’t apply make up ( on the rare occasions I wore it) as it would just be sliding off my face due to the sweat running down in. When the flushes were at there worst it would leave me feeling dirty and down because I had no control over what was happening to my body despite using supplements such as red clover, sage, black cohosh, royal jelly etc.

This severe sweating cycle would then out of the blue just stop sometimes after months, sometimes after weeks. I would be able to dry my hair and only have to dab my face a few times. I would have possibly two flushes a day and the menopause would be back to feeling manageable. It was the never knowing day to day what the menopause would bring that would leave me feeling stressed.

4 days into HRT and the sweating / hot flushes are reducing massively. I haven’t had to change my t shirt 15 minutes after first putting it on because I had armpit rings – something I have never suffered with even when I was well and would go to the gym. If it stops these or just reduces the hot flushes to the point where a tissue will dab the beads of sweat off my face I can live with that after the summer I have just been through.

Just 4 doses in and I can understand why some women say that HRT is a miracle drug and has given them their lives back. Until I started 4 days ago I really didn’t realise how much of my life had been lost to the menopause over the last few years.

Oh and we did get a car on Friday and the plan is that we will pick it up tomorrow ( Tuesday 25th August 2020).

Sumatriptan positive news

Like clockwork my migraine arrived within the predicted timescale, which is every month between 18th – 22nd. It started around midnight but as I was half asleep and I didn’t twig, I just thought maybe it isn’t as the pain wasn’t intense it just felt like my sinuses had become a bit stuffy. However by 2am it was clear with every passing minute the pain was becoming more intense. I panicked a bit thinking I may have missed my window of opportunity with the sumatriptan.

I am so thankful that I put my migraine grab bag together, it sits on a shelf beside the bed with all my medications. Inside is a bottle of water, a pint sized plastic cup, soluble paracetamol, soluble aspirin, buccastem and sumatriptan. Having it all in one place means I don’t have to fumble around trying to find various medications. It is all in one place, plonk the soluble tablets in the cup, tip in the water and then take them and the sumatriptan. Then shove the buccastem between my gum and my top lip. Turn off the bedroom light and go back to sleep. 

Migraine grab bag

Previously I would take the medication I had, then spend the next couple of hours trying in vain not to vomit them all back up. By 4.30am my migraine had subsided to just a headache and I was up chatting to Jay, having a cup of sugary tea as my sugar cravings and crazy hunger kick in straight after a migraine subsides and vomiting is no longer on the cards. I did go back to bed at around 5.30am and slept a few more hours.

I really didn’t feel well all day, quite spaced out and didn’t quite suss out that with all the drama of having a migraine I had forgotten to take my morning medications. I was quite lucky in the withdrawal symptoms weren’t that bad I just felt unwell. 

The protocol I have been following with the supplements says that you won’t notice any change in your migraines ( severity or frequency ) until you have been taking them for a period of at least 3 months. So I was expecting to have a migraine this month. I had felt the warning side of a cranky bad mood ( to me it feels like bad PMT and feeling and getting angry with inanimate objects) the day before which seems to be the only warning sign that I get.  It always seems to be the day before that this strange mood hits where nothing is right and everything is conspiring against me. I have identified this now with the last two migraines now that I am tracking them with more detail. There is no food trigger as my diet is pretty similar each day to the next. With it always being within that date range I would say that it was more than likely hormone based. Despite the fact since coming off the pill in December 2019 there has been zero sign of any menses.

My migraine tracker

As usual my memory of Saturday is pretty hazy other than the fact I was ravenously hungry all day and extremely tired. I remember Sunday which is better than normal, as usually I lose a few days worth of detailed memory. Sunday I still didn’t feel 100% and managed to pass out whilst trying to get on the floor due to feeling like I was going to faint. Resulting in a bruised bum and a Labrador sitting on me refusing to allow me to get up again until he believed it was safe for me to do so. The signal that it is safe, is Dembe going and getting me a toy from his toy box and wanting to play. Until then he will prevent me from even sitting up but sitting on my arm or throwing himself across my chest. This isn’t something we have trained him to do but something he does instinctively and I am incredibly proud of our boy.

It is fantastic news that the sumatriptan  is working so well for me and it has taken away some of the fear that had been surrounding the next migraine attack after the one in May been just so bloody awful. I am noticing with the magnesium supplement that I am sleeping an awful lot better, which is great as for the first time in years I am not spending hours awake in the middle of the night. So it is positive news on multiple fronts for a change.