I can’t lie, I am struggling at the moment. I am not feeling sorry for myself because I just don’t have the energy for it. All I want to do is sleep, sleep and actually feel like I have slept. Instead of sleeping 12 hours and still feeling like I haven’t slept.
My joint pain is up through the roof. Nothing is making a dent in it and I have quite a pharmaceutical arsenal to choose from. My hands are stiff and sore all day everyday. Typing is becoming more and more difficult. I am at a loss of what I can do. I generally feel so awful all I want to do is hide and never emerge from under the covers until the pain has gone.
I am too sick to pretend everything is ok like I normally do.
I keep pretending to everyone that I am feeling better than I was the day before. I’m not I am just getting a little more used to feeling this crappy for days on end.
As typing is currently causing me too much pain, this will be my blog post this week.
Much love
Rach x
the myasthenia kid 
I am sending you good vibes and lots of strength. When I feel like that I try to remember over and over “this is just temporary and I will feel better soon.”
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Thank you.
I always try to remind myself in times like this of my favourite quote “this too shall pass”. I am hanging on in there.
Thank you again for taking the time to reach out to a total stranger. It is much appreciated.
Rach x
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Well, we’re not strangers anymore, so keep in touch. 🙂
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True lol xxx
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I hope you get some relief soon.
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thank you Bee xxx
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You know I am always thinking about you Rachel ❤️
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Thank you Nicola xx
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