What can I say?
My MG like symptoms have disappeared for the time being and I haven’t had to take mestinon since Saturday night and I haven’t used oxygen either.
I am having problems typing as my ring finger and little finger on my left hand keep curling up towards the palm of my hand and I can no longer straighten them. Its been happening for a few months now I am pretty sure its called Dupuytrens contracture – another connective tissue disorder. My maternal grandfather suffered with it, its genetic but Dr’s also blame smoking……Well they are just going to have to shout at me over that one. I don’t go out, I barely drink I have problems eating, smoking is the one thing in life I enjoy. I just don’t feel like giving up at the moment. Its my emotional crutch, its all I have left from my old life.
It feels like a dirty little secret that I smoke. I am ashamed of the fact that I am a slave to nicotine but don’t condemn me as I’m not forcing it on you. I don’t smoke around kids, I feel it sets a bad example. I don’t smoke in my house as it wrecks the decor and makes the place stink. I know my parents would be over the moon if I gave up. Its just I don’t want to, when I do I will make the effort. Life’s hard enough at the minute without adding to it.
At present it feels like it doesn’t matter how many hours I sleep I still can’t re-charge my batteries. I’m constantly exhausted, my mood is a million times better but I still have no energy. I am blaming the heat and the strange changeable weather we are having at present. Its raining here today…..thank god it saves me nagging hubs to water the garden later.
So I don’t have much news but I thought I would let you all know how I am after last week.
Tomorrow I have my first physio therapy session…….wish me luck. All I ask is that I don’t end up in more pain than I am already and the woman understands about POTS and exercise intolerance!